Personal profile
Research Biography
I am a Research Associate at the Flinders University Caring Futures Institute. I have a keen interest in social justice and the human rights of people with dementia and people with disability. Under a cotutelle (dual-degree) PhD program, I completed my doctoral studies at Flinders University in South Australia and Western University in Ontario, Canada. My PhD research focussed on the epistemic (knowledge-related) rights of people with dementia. I explored how epistemic rights were constrained, supported, and negotiated as people with dementia moved from home into residential aged care facilities.
Completed Supervisions
- Dementia and Communication (1)
Education/Academic qualification
PhD, Who knows? Upholding epistemic rights of people with dementia as they move into a residential aged care facility, Flinders University
Award Date: 2 Feb 2026
PhD, Who knows? Upholding epistemic rights of people with dementia as they move into a residential aged care facility, Western University, London
Award Date: 2 Feb 2026
Bachelor (Honours), Speech Pathology, Flinders University
Award Date: 15 Apr 2014
External positions
Research Assistant, McGill University
Oct 2017 → Aug 2018
Teaching Assistant, Western University, London
Sept 2016 → May 2019
Research Assistant, Macquarie University
Dec 2015 → Oct 2016
Speech Pathologist, Southern Adelaide Local Health Network
Jul 2015 → Jul 2016
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
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SDG 3 Good Health and Well-being
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SDG 10 Reduced Inequalities
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SDG 16 Peace, Justice and Strong Institutions
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Collaborations and top research areas from the last five years
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Expanding current understandings of epistemic injustice and dementia: Learning from stigma theory
Young, J. A., Lind, C., Orange, J. B. & Savundranayagam, M. Y., 1 Mar 2019, In: Journal of Aging Studies. 48, p. 76-84 9 p.Research output: Contribution to journal › Article › peer-review
45 Citations (Scopus) -
What is stigma?
Young, J., Orange, J. B. & Lind, C., 2024, World Alzheimer Report 2024: : Global changes in attitudes to dementia. Alzheimer's Disease International, p. 14-19 6 p.Research output: Chapter in Book/Report/Conference proceeding › Chapter
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A qualitative systematic review of experiences of persons with dementia regarding transition to long-term care
Young, J. A., Lind, C. & Orange, J. B., Jan 2021, In: Dementia. 20, 1, p. 5-27 23 p.Research output: Contribution to journal › Review article › peer-review
13 Citations (Scopus) -
Walking with Gail: The local achievement of interactional rhythm and synchrony through footwork
Reed, D., Young, J. A. & Wooffitt, R., 16 Jan 2024, In: Social Interaction. Video-Based Studies of Human Sociality. 7, 1, 26 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile1 Downloads (Pure) -
‘I wasn't made to feel like a nut case after all’: A qualitative story completion study exploring healthcare recipient and carer perceptions of good professional caregiving relationships
Feo, R., Young, J. A., Urry, K., Lawless, M., Hunter, S. C., Kitson, A. & Conroy, T., Feb 2024, In: Health Expectations. 27, 1, 13 p., e13871.Research output: Contribution to journal › Article › peer-review
Open AccessFile9 Citations (Scopus)42 Downloads (Pure)