A Co-design of a digital platform to support self-management of breast cancer–related lymphoedema

Navaz Naghavi; Monique Bareham; Olivia Cook; Neil Piller; Raymond J. Chan; Lisa Beatty; Kerry A. Sherman; Emma Kemp; Ganessan Kichenadasse; Richard L. Reed; Matthew P. Wallen; Richard Woodman; Billingsley Kaambwa; Bogda Koczwara

doi:10.1007/s00520-025-10300-7

A Co-design of a digital platform to support self-management of breast cancer–related lymphoedema

Navaz Naghavi, Monique Bareham, Olivia Cook, Neil Piller, Raymond J. Chan, Lisa Beatty, Kerry A. Sherman, Emma Kemp, Ganessan Kichenadasse, Richard L. Reed, Matthew P. Wallen, Richard Woodman, Billingsley Kaambwa, Bogda Koczwara

Research output: Contribution to journal › Comment/debate

Abstract

Breast Cancer-Related Lymphoedema (BCRL) is a chronic condition that requires long-term management. In Australia and elsewhere, BCRL services are limited and fragmented, leaving survivors unsure of where to seek support. An Australian study of a web-based Lymphoedema Self-Care intervention in 97 women with breast cancer showed a significant increase in self-efficacy and a reduction in distress and BCRL symptom scores. To inform a future implementation study, we undertook a co-design with consumers (breast cancer survivors with or at risk of lymphoedema) and healthcare professionals (breast care nurses, lymphoedema therapists, massage therapists, and representatives from compression garment organizations) to develop an online platform to support self-management of BCRL in Australia.

Original language	English
Article number	68
Number of pages	6
Journal	Supportive Care in Cancer
Volume	34
Issue number	1
DOIs	https://doi.org/10.1007/s00520-025-10300-7
Publication status	Published - Jan 2026

Keywords

lymphoedema
breast cancer-related lymphoedema
self‑management

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Naghavi, N., Bareham, M., Cook, O., Piller, N., Chan, R. J., Beatty, L., Sherman, K. A., Kemp, E., Kichenadasse, G., Reed, R. L., Wallen, M. P., Woodman, R., Kaambwa, B., & Koczwara, B. (2026). A Co-design of a digital platform to support self-management of breast cancer–related lymphoedema. Supportive Care in Cancer, 34(1), Article 68. https://doi.org/10.1007/s00520-025-10300-7

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title = "A Co-design of a digital platform to support self-management of breast cancer–related lymphoedema",

abstract = "Breast Cancer-Related Lymphoedema (BCRL) is a chronic condition that requires long-term management. In Australia and elsewhere, BCRL services are limited and fragmented, leaving survivors unsure of where to seek support. An Australian study of a web-based Lymphoedema Self-Care intervention in 97 women with breast cancer showed a significant increase in self-efficacy and a reduction in distress and BCRL symptom scores. To inform a future implementation study, we undertook a co-design with consumers (breast cancer survivors with or at risk of lymphoedema) and healthcare professionals (breast care nurses, lymphoedema therapists, massage therapists, and representatives from compression garment organizations) to develop an online platform to support self-management of BCRL in Australia.",

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author = "Navaz Naghavi and Monique Bareham and Olivia Cook and Neil Piller and Chan, {Raymond J.} and Lisa Beatty and Sherman, {Kerry A.} and Emma Kemp and Ganessan Kichenadasse and Reed, {Richard L.} and Wallen, {Matthew P.} and Richard Woodman and Billingsley Kaambwa and Bogda Koczwara",

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AU - Naghavi, Navaz

AU - Bareham, Monique

AU - Cook, Olivia

AU - Piller, Neil

AU - Chan, Raymond J.

AU - Beatty, Lisa

AU - Sherman, Kerry A.

AU - Kemp, Emma

AU - Kichenadasse, Ganessan

AU - Reed, Richard L.

AU - Wallen, Matthew P.

AU - Woodman, Richard

AU - Kaambwa, Billingsley

AU - Koczwara, Bogda

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AB - Breast Cancer-Related Lymphoedema (BCRL) is a chronic condition that requires long-term management. In Australia and elsewhere, BCRL services are limited and fragmented, leaving survivors unsure of where to seek support. An Australian study of a web-based Lymphoedema Self-Care intervention in 97 women with breast cancer showed a significant increase in self-efficacy and a reduction in distress and BCRL symptom scores. To inform a future implementation study, we undertook a co-design with consumers (breast cancer survivors with or at risk of lymphoedema) and healthcare professionals (breast care nurses, lymphoedema therapists, massage therapists, and representatives from compression garment organizations) to develop an online platform to support self-management of BCRL in Australia.

KW - lymphoedema

KW - breast cancer-related lymphoedema

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ER -

A Co-design of a digital platform to support self-management of breast cancer–related lymphoedema

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