TY - JOUR
T1 - Adaptation and evaluation of a child-friendly patient reported outcome measure for use in Australia
AU - Bradford, Natalie K.
AU - Chan, Raymond J.
AU - Walker, Rick
AU - Herbert, Anthony
AU - Cashion, Christine
AU - Tjondronegoro, Dian
AU - Yates, Patsy
PY - 2021/2
Y1 - 2021/2
N2 - Background: Use of Patient Reported Outcomes (PROs) to assess symptoms in children are not routinely used in clinical practice, yet children with complex conditions experience a significant number of symptoms. Aim: To adapt and evaluate the Symptom Screening in Pediatrics Tool (SSPedi), a PRO measure developed in Canada for use with Australian children. Methods: SSPedi wording was adapted and item relevance assessed by an expert clinical group (N = 7) resulting in the Australian version (SSPedi-Aus). Cognitive interviewing with children with cancer (N = 10, 8–18 years) established understanding and difficulty with completing. A second group of child-parent dyads (N = 30) were recruited to evaluate psychometric properties (content validity, test-retest reliability, and parent-proxy) measured with Intraclass Correlation Coefficients (ICC) with 95% Confidence Intervals (CI). Acceptability and usefulness of SSPedi-Aus were also assessed. Findings: Construct validity was confirmed across all items by 30 children. Child test-retest achieved excellent concordance (ICC 0.98, 95% CI 0.91 to 0.99). Symptoms causing the most distress as reported by children were different to those identified by parents. Although children and parents returned a similar mean total score (13.43 vs. 13.80), there was weak overall interrater reliability (ICC 0.37, 95% CI −0.26 to 0.70, p = 0.12). Conclusion: Children are distressed by symptoms that may not be identified by parents or reported to clinicians, yet these symptoms are amendable to intervention. The SSPedi-Aus is useful to assess the level of distress caused by symptoms in children.
AB - Background: Use of Patient Reported Outcomes (PROs) to assess symptoms in children are not routinely used in clinical practice, yet children with complex conditions experience a significant number of symptoms. Aim: To adapt and evaluate the Symptom Screening in Pediatrics Tool (SSPedi), a PRO measure developed in Canada for use with Australian children. Methods: SSPedi wording was adapted and item relevance assessed by an expert clinical group (N = 7) resulting in the Australian version (SSPedi-Aus). Cognitive interviewing with children with cancer (N = 10, 8–18 years) established understanding and difficulty with completing. A second group of child-parent dyads (N = 30) were recruited to evaluate psychometric properties (content validity, test-retest reliability, and parent-proxy) measured with Intraclass Correlation Coefficients (ICC) with 95% Confidence Intervals (CI). Acceptability and usefulness of SSPedi-Aus were also assessed. Findings: Construct validity was confirmed across all items by 30 children. Child test-retest achieved excellent concordance (ICC 0.98, 95% CI 0.91 to 0.99). Symptoms causing the most distress as reported by children were different to those identified by parents. Although children and parents returned a similar mean total score (13.43 vs. 13.80), there was weak overall interrater reliability (ICC 0.37, 95% CI −0.26 to 0.70, p = 0.12). Conclusion: Children are distressed by symptoms that may not be identified by parents or reported to clinicians, yet these symptoms are amendable to intervention. The SSPedi-Aus is useful to assess the level of distress caused by symptoms in children.
KW - Cancer
KW - Paediatrics
KW - Patient-reported outcome measures
KW - Psychometrics
KW - Symptoms
UR - http://www.scopus.com/inward/record.url?scp=85089725581&partnerID=8YFLogxK
U2 - 10.1016/j.colegn.2020.05.003
DO - 10.1016/j.colegn.2020.05.003
M3 - Article
AN - SCOPUS:85089725581
SN - 1322-7696
VL - 28
SP - 63
EP - 70
JO - Collegian
JF - Collegian
IS - 1
ER -