An ethical code for collecting, using and transferring sensitive health data: outcomes of a modified Policy Delphi process in Singapore

Tamra Lysaght, Hui Yun Chan, James Scheibner, Hui Jin Toh, Bernadette Richards

Research output: Contribution to journalArticlepeer-review

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Abstract

One of the core goals of Digital Health Technologies (DHT) is to transform healthcare services and delivery by shifting primary care from hospitals into the community. However, achieving this goal will rely on the collection, use and storage of large datasets. Some of these datasets will be linked to multiple sources, and may include highly sensitive health information that needs to be transferred across institutional and jurisdictional boundaries. The growth of DHT has outpaced the establishment of clear legal pathways to facilitate the collection, use and transfer of potentially sensitive health data. Our study aimed to address this gap with an ethical code to guide researchers developing DHT with international collaborative partners in Singapore. We generated this code using a modified Policy Delphi process designed to engage stakeholders in the deliberation of health data ethics and governance. This paper reports the outcomes of this process along with the key components of the code and identifies areas for future research.
Original languageEnglish
Article number78
Number of pages14
JournalBMC MEDICAL ETHICS
Volume24
Issue number1
DOIs
Publication statusPublished - Dec 2023

Keywords

  • Bioethics
  • Data sensitivity
  • Ethical guidelines
  • Health data
  • Health data ethics
  • International data transfer
  • Modified Policy Delphi

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