Cardiac tachyarrhythmias and patient values and preferences for their management: The European Heart Rhythm Association (EHRA) consensus document endorsed by the Heart Rhythm Society (HRS), Asia Pacific Heart Rhythm Society (APHRS), and Sociedad Latinoamericana de Estimulación Cardíaca y Electrofisiología (SOLEACE)

Deirdre A. Lane, Luis Aguinaga, Carina Blomström-Lundqvist, Giuseppe Boriani, Gheorge Andrei Dan, Mellanie True Hills, Elaine M. Hylek, Stephen A. Lahaye, Gregory Y.H. Lip, Trudie Lobban, John Mandrola, Pamela J. McCabe, Susanne S. Pedersen, Ron Pisters, Simon Stewart, Kathryn Wood, Tatjana S. Potpara, Bulent Gorenek, Jamie Beth Conti, Roberto KeeganSuzannah Power, Jeroen Hendriks, Philippe Ritter, Hugh Calkins, Francesco Violi, Jodie Hurwitz

Research output: Contribution to journalArticlepeer-review

83 Citations (Scopus)

Abstract

Cardiac tachyarrhythmias are recurrent or chronic and in some cases life-threatening conditions. Heart rhythm disturbances are of-ten highly symptomatic and the psychological impact of the disease can be significant. Patients’ beliefs and knowledge about their health(and illness), medications, and healthcare they receive are important determinants of whether or not they accept recommended treatments; influence their coping responses to their illness and treatment; adherence to recommended therapy; and ultimately affects health outcomes. Incorporation of patients’ values and preferences for therapy should now be considered as an integral part of the decision-making process and treatment strategy.It is important to acknowledge and understand the impact of cardiac tachyarrhythmias on the patient. To address this issue, a TaskForce was convened by the European Heart Rhythm Association (EHRA), and endorsed by the Heart Rhythm Society (HRS),Asia-Pacific Heart Rhythm Society (APHRS), and Sociedad Latinoa-mericana de Estimulacio ́n Cardı ́aca y Electrofisiologı ́a (SOLEACE),with the remit to comprehensively review the published evidenceavailable, to publish a joint consensus document on patient valuesand preferences for the management of cardiac tachyarrhythmias, and to provide up-to-date consensus recommendations for use in clinical practice. Hence this unique consensus document focuses on patients, summarizing the available literature on patients’ experiences of living with various cardiac tachyarrhythmias and their treatment preferences,and identifies gaps in knowledge which will help to inform clinical practice and future research. The document will also summarize key points for discussions with patients during consultations regarding their condition, treatment options, disease trajectory, treatment goals, and outcomes. Finally, this document provides links to useful resources and patient advocacy groups and organizations and professional societies relevant to each group of cardiac tachyarrhythmias.
Original languageEnglish
Pages (from-to)1747-1769
Number of pages23
JournalEUROPACE
Volume17
Issue number12
Early online date24 Jun 2015
DOIs
Publication statusPublished - Dec 2015
Externally publishedYes

Keywords

  • Cardiac arrhythmia
  • Patient education programme
  • Patient's values
  • Patient-reported outcomes
  • patient-centred care
  • Preferences
  • Quality of life
  • Shared decision-making

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