Carers' assessment of patient social adjustment following pulmonary rehabilitation

Paul Cafarella, Peter Frith

Research output: Contribution to journalArticlepeer-review


Pulmonary rehabilitation (PR) programs are recognised as providing benefits for patients in terms of functional capacity, quality of life and reduced psychiatric morbidity. Such research has focussed on the patient's viewpoint and it is of clinical and social interest to consider whether carers perceive their patients to be better socially adjusted following PR. Method: 38 carers completed the Katz Adjustment Scales (KAS), Caregiver Strain Index (CSI) and General Health Questionnaire (GHQ) before and after their patients completed PR. 30 matched carers also completed these questionnaires at baseline and 3 months. Results: Repeated measures ANOVAs indicated that carers' perceived their patients to be significantly (p0.05) less helpless (pre PR mean=12.6, sd=5.82; post PR mean=7.74, sd=3.88), less nervous (pre PR mean=22.95, sd=8.78; post PR mean=15.l, sd=6.10), less anxious (pre PR mean=l7.4, sd=6.96; post PR mean=12.15, sd=4.75) and less withdrawn (pre PR mean=19.05, sd=5.54; post PR mean=14.8l, sd=4.52) following PR. Carers were also more satisfied with their patients' performance on socially expected activities (pre PR mean=12.9, sd=3.1; post PR mean=8.35, sd=2.9), experienced less strain (pre PR mean=6.12, sd=4.2; post PR mean=8.35, sd=2.9) and had lower levels of psychiatric morbidity (pre PR mean=4.78, sd=5.9; post PR mean=2.99, sd=4.08) following PR. Psychiatric casedness amongst carers decreased from 25% to 16%. Conclusions: Following PR, carers reported improved psychological health and social adjustment for their patients in a number of clinically relevant areas. This supports previous research that has noted such changes from patients' perspectives. Furthermore, such changes are accompanied by improvements in carers' psychological status, consistent with the view that PR has benefits for both parties in the care dyad.

Original languageEnglish
Pages (from-to)A12
Issue numberSUPPL. 1
Publication statusPublished - 2001
Externally publishedYes


  • Burden
  • Carers
  • Psychiatric morbidity
  • Pulmonary rehabilitation
  • Social adjustment


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