Challenges in the first ever national survey of people with intellectual disabilities

Sally Malam; Eric Emerson; Ian Davies

doi:10.1017/CBO9781139381635.020

Challenges in the first ever national survey of people with intellectual disabilities

Sally Malam, Eric Emerson, Ian Davies

Research output: Chapter in Book/Report/Conference proceeding › Chapter › peer-review

3 Citations (Scopus)

Abstract

Introduction and background

The population of adults with intellectual disabilities has been largely neglected in survey research, as the significant impairments in communication and understanding that are common among this population were considered too great a barrier to their participation in large-scale surveys. While there had been qualitative research, prior to 2002 there had never been a nationally representative survey conducted with this population. In surveys concerning this population, data was largely collected from proxy respondents, such as parents or caregivers. In the absence of a sampling frame for the whole population, surveys generally used convenience samples of those in touch with services.

Original language	English
Title of host publication	Hard-to-Survey Populations
Editors	Roger Tourangeau, Brad Edwards, Timothy P. Johnson, Kirk M. Wolter, Nancy Bates
Publisher	Cambridge University Press
Chapter	16
Pages	347-367
Number of pages	21
ISBN (Electronic)	9781139381635
ISBN (Print)	9781107031357, 9781107628717
DOIs	https://doi.org/10.1017/CBO9781139381635.020
Publication status	Published - 2014
Externally published	Yes

Keywords

adults with intellectual disabilities
large-scale surveys
participation in large-scale surveys
nationally representative survey
proxy respondents
convenience samples
Valuing People: A New Strategy for Learning Disability for the 21st Century
UK Department of Health
lack of national information

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10.1017/CBO9781139381635.020Licence: In Copyright

Cite this

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Challenges in the first ever national survey of people with intellectual disabilities. / Malam, Sally; Emerson, Eric; Davies, Ian.

Hard-to-Survey Populations. ed. / Roger Tourangeau; Brad Edwards; Timothy P. Johnson; Kirk M. Wolter; Nancy Bates. Cambridge University Press, 2014. p. 347-367.

Research output: Chapter in Book/Report/Conference proceeding › Chapter › peer-review

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Challenges in the first ever national survey of people with intellectual disabilities

Abstract

Keywords

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