TY - JOUR
T1 - Clinical Management of Financial Toxicity–Identifying Opportunities through Experiential Insights of Cancer Survivors, Caregivers, and Social Workers
AU - Longo, Christopher J.
AU - Gordon, Louisa G.
AU - Nund, Rebecca L.
AU - Hart, Nicolas H.
AU - Teleni, Laisa
AU - Thamm, Carla
AU - Hollingdrake, Olivia
AU - Crawford-Williams, Fiona
AU - Koczwara, Bogda
AU - Ownsworth, Tamara
AU - Born, Stephen
AU - Schoonbeek, Sue
AU - Stone, Leanne
AU - Barrett, Christie
AU - Chan, Raymond J.
PY - 2022/10
Y1 - 2022/10
N2 - Perspectives of cancer survivors, caregivers, and social workers as key stakeholders on the clinical management of financial toxicity (FT) are critical to identify opportunities for better FT management. Semi-structured interviews (cancer survivors, caregivers) and a focus group (social workers) were undertaken using purposive sampling at a quaternary public hospital in Australia. People with any cancer diagnosis attending the hospital were eligible. Data were analysed using inductive-deductive content analysis techniques. Twenty-two stakeholders (n = 10 cancer survivors of mixed-cancer types, n = 5 caregivers, and n = 7 social workers) participated. Key findings included: (i) genuine concern for FT of cancer survivors and caregivers shown through practical support by health care and social workers; (ii) need for clarity of role and services; (iii) importance of timely information flow; and (iv) proactive navigation as a priority. While cancer survivors and caregivers received financial assistance and support from the hospital, the lack of synchronised, shared understanding of roles and services in relation to finance between cancer survivors, caregivers, and health professionals undermined the effectiveness and consistency of these services. A proactive approach to anticipate cancer survivors’ and caregivers’ needs is recommended. Future research may develop and evaluate initiatives to manage cancer survivors and families FT experiences and outcomes.
AB - Perspectives of cancer survivors, caregivers, and social workers as key stakeholders on the clinical management of financial toxicity (FT) are critical to identify opportunities for better FT management. Semi-structured interviews (cancer survivors, caregivers) and a focus group (social workers) were undertaken using purposive sampling at a quaternary public hospital in Australia. People with any cancer diagnosis attending the hospital were eligible. Data were analysed using inductive-deductive content analysis techniques. Twenty-two stakeholders (n = 10 cancer survivors of mixed-cancer types, n = 5 caregivers, and n = 7 social workers) participated. Key findings included: (i) genuine concern for FT of cancer survivors and caregivers shown through practical support by health care and social workers; (ii) need for clarity of role and services; (iii) importance of timely information flow; and (iv) proactive navigation as a priority. While cancer survivors and caregivers received financial assistance and support from the hospital, the lack of synchronised, shared understanding of roles and services in relation to finance between cancer survivors, caregivers, and health professionals undermined the effectiveness and consistency of these services. A proactive approach to anticipate cancer survivors’ and caregivers’ needs is recommended. Future research may develop and evaluate initiatives to manage cancer survivors and families FT experiences and outcomes.
KW - Cancer survivors
KW - caregivers
KW - financial burden
KW - financial distress
KW - financial toxicity
UR - http://www.scopus.com/inward/record.url?scp=85140613619&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/NHMRC/1194051
U2 - 10.3390/curroncol29100609
DO - 10.3390/curroncol29100609
M3 - Article
C2 - 36290886
AN - SCOPUS:85140613619
SN - 1718-7729
VL - 29
SP - 7705
EP - 7717
JO - Current Oncology
JF - Current Oncology
IS - 10
ER -