Abstract
Background
The aim of the presentation is to report similarities and differences of perceived caregiver challenges in dementia care between migrant group and non-migrant group in Australia.
Methods
A qualitative approach underpinned by Giddens’ Structuration Theory and Berry’s acculturation theory were used to guide data collection and thematic analyses in order to identify the interplay relationships between socially and culturally constructed dementia care services and caregivers/care staff’s practice. Participants in the project include 46 caregivers from four migrant groups, 26 caregivers from non-migrant group and 35 care staff from 13 community service organisations. Interviews/focus groups were used to collect data from caregivers. Focus groups were used to discuss service delivery with care staff.
Results
Three themes with a number of subthemes were identified from interviews/focus groups with participants. These themes and sub-themes reveal similarities and differences of caregiver challenges faced by the migrant group and non-migrant group in dementia care. These themes are stated as: (1) Shared barriers to accessing and utilising dementia care services across cultural groups: caregivers’ low levels of dementia literacy, the lack of knowledge about dementia care services and poor experiences with service providers; (2) Shared satisfaction with dementia services across cultural groups: rapport between care staff and caregivers, flexible service delivery, individualised caregiver support, respite care and caregiver support groups; (3) Specific challenges faced by migrant groups: language barriers, dementia stigma, the lack of sources of care, insufficient care staff with bilingual and bicultural skills and cultural dissonance in service delivery.
Conclusions
Caregiver challenges in dementia care in a multicultural society are complex and influenced by social, cultural, organizational and individual factors. Facilitating consumer-directed dementia care requires the scale-up of individualized, culturally and linguistically appropriate dementia care services and the workforce to deliver these services.
The aim of the presentation is to report similarities and differences of perceived caregiver challenges in dementia care between migrant group and non-migrant group in Australia.
Methods
A qualitative approach underpinned by Giddens’ Structuration Theory and Berry’s acculturation theory were used to guide data collection and thematic analyses in order to identify the interplay relationships between socially and culturally constructed dementia care services and caregivers/care staff’s practice. Participants in the project include 46 caregivers from four migrant groups, 26 caregivers from non-migrant group and 35 care staff from 13 community service organisations. Interviews/focus groups were used to collect data from caregivers. Focus groups were used to discuss service delivery with care staff.
Results
Three themes with a number of subthemes were identified from interviews/focus groups with participants. These themes and sub-themes reveal similarities and differences of caregiver challenges faced by the migrant group and non-migrant group in dementia care. These themes are stated as: (1) Shared barriers to accessing and utilising dementia care services across cultural groups: caregivers’ low levels of dementia literacy, the lack of knowledge about dementia care services and poor experiences with service providers; (2) Shared satisfaction with dementia services across cultural groups: rapport between care staff and caregivers, flexible service delivery, individualised caregiver support, respite care and caregiver support groups; (3) Specific challenges faced by migrant groups: language barriers, dementia stigma, the lack of sources of care, insufficient care staff with bilingual and bicultural skills and cultural dissonance in service delivery.
Conclusions
Caregiver challenges in dementia care in a multicultural society are complex and influenced by social, cultural, organizational and individual factors. Facilitating consumer-directed dementia care requires the scale-up of individualized, culturally and linguistically appropriate dementia care services and the workforce to deliver these services.
| Original language | English |
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| DOIs | |
| Publication status | Published - 2016 |
| Event | Alzheimer’s Association International Conference 2016 - Toronto, Canada Duration: 22 Jul 2016 → 28 Jul 2016 |
Conference
| Conference | Alzheimer’s Association International Conference 2016 |
|---|---|
| Country/Territory | Canada |
| City | Toronto |
| Period | 22/07/16 → 28/07/16 |