Activities per year
To assess the effects of consumer engagement in health care policy, research and services.
We updated a review published in 2006 and 2009 and revised the previous search strategies for key databases (The CochraneCentral Register of Controlled Trials; MEDLINE; EMBASE; PsycINFO; CINAHL; Web of Science) up to February 2020. Selection criteria included randomised controlled trials assessing consumer engagement in developing health care policy, research, or health services. The International Association for Public Participation, Spectrum of Public Participation was used to identify,describe, compare and analyse consumer engagement. Outcome measures were effects on people; effects on the policy/research/health care services; or process outcomes.
We included 23 randomised controlled trials with a moderate or high risk of bias, involving 136,265 participants. Most consumer engagement strategies adopted a consultative approach during the development phase of interventions, targeted to health services. Based on four large cluster-randomised controlled trials, there is evidence that consumer engagement in the development and delivery of health services to enhance the care of pregnant women results in a reduction in neonatal, but not maternal, mortality. From other trials, there is evidence that involving consumers in developing patient information material results in material that is more relevant, readable and understandable for patients, and can improve knowledge. Mixed effects are reported of consumer-engagement on the development and/or implementation of health professional training. There is some evidence that using consumer interviewers instead of staff in satisfaction surveys can have a small influence on the results. There is some evidence that consumers may have a role in identifying broader range of health care priorities that are complementary to those from professionals. There is some evidence that consumer engagement in monitoring and evaluating health services may impact perceptions of patient safety or quality of life.
There is growing evidence from randomised controlled trials of the effects of consumer engagement on the relevance and positive outcomes of health policy, research and services. Health care consumers, providers, researchers and funders should continue to employ evidence-informed consumer engagement in their jurisdictions, with embedded evaluation.
Bibliographical noteThis work is licensed under a Creative Commons Attribution 4.0 International License.
- systematic review
- consumer engagement
- health policy
- health research
- health services
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A winner of the Big Ideas video competition to improve the Australian health system. Consumer Health Forum of Australia, 2021.
Pinero de Plaza, Alejandra (Recipient), 23 Feb 2021
Prize: Other distinctionFile
Research Program led by Dr Pinero de Plaza (2019-2026): Visibility and Technological Solutions for Frail, Homebound and Bedridden People - FHBP
Maria Alejandra Pinero de Plaza (Participant), Penelope McMillan (Participant), Alline Beleigoli (Participant), Michael Lawless (Participant), Alexandra Mudd (Participant), Mandy Archibald (Participant), Matthew Tieu (Participant), Rebecca Feo (Participant), Erin Morton (Participant), Belinda Lange (Participant), Mark Thompson (Participant), Danielle Taylor (Participant), Sue Gordon (Participant), Agustina Gancia (Participant), Sarah Hunter (Participant), Kathy Phelan (Participant), Robyn Clark (Participant), Ricky Buchanan (Participant), Renuka Visvanathan (Participant) & Alison Kitson (Participant)2021
Activity: Other activity types › Other
Meet the Minds/Brave: Highlighting the unseen: Bringing frail, homebound and bedridden people into view with technology
Alejandra Pinero de Plaza (Speaker)8 Jun 2021
Activity: Talk or presentation types › Oral presentation
Pinero de Plaza, M. A., McMillan, P., Buchanan, R., Beleigoli, A., Lawless, M., Archibald, M., Mudd, A. & Kitson, A., Mar 2021.
Research output: Contribution to conference › Poster › peer-reviewOpen AccessFile
Pinero de Plaza, M. A., 2 Mar 2021, Vimeo.
Research output: Other contributionOpen Access
Making the Invisible Visible: Exploring the Experiences of Frail Homebound and Bedridden People: Preliminary Research Report for the CommunityPinero de Plaza, M. A., 16 Apr 2021, Bedford Park, South Australia: Flinders Universtiy. 34 p.
Research output: Book/Report › Commissioned reportOpen AccessFile9 Downloads (Pure)