Consumer Perspectives on MyHealth Record: A Review

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Abstract

The vision for Australia's national electronic health record system included empowering consumers to become active participants in their own health care. This paper aims to critically review the literature on consumer perspectives of Australia's My Health Record (formerly PCEHR). The review is based on a subset of articles (n=12) identified in the Australian EHR Repository (N=143), a repository of metadata of Australian Research on EHR located at Flinders University. Results show low levels of awareness and concerns about sharing records and equity of access for all Australians, which in view of the change from opt in to opt out raises concerns about explicit consent. Improved promotion and support, along with different models of access might lead to higher consumer engagement with, and use, of My Health Record, especially for populations at risk of digital exclusion.

Original languageEnglish
Title of host publicationIntegrating and Connecting Care
Subtitle of host publicationSelected Papers from the 25th Australian National Health Informatics Conference (HIC 2017)
EditorsAngela Ryan, Louise K. Schaper, Sue Whetton
PublisherIOS PRESS
Chapter22
Pages146-152
Number of pages7
ISBN (Electronic)978-1-61499-783-2
ISBN (Print) 978-1-61499-782-5
DOIs
Publication statusPublished - 2017
Event25th Australian National Health Informatics Conference, HIC 2017 -
Duration: 6 Aug 2017 → …

Publication series

NameStudies in Health Technology and Informatics
Volume239
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference25th Australian National Health Informatics Conference, HIC 2017
Period6/08/17 → …

Bibliographical note

This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).

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  • Cite this

    van Kasteren, Y., Maeder, A., Williams, P. A., & Damarell, R. (2017). Consumer Perspectives on MyHealth Record: A Review. In A. Ryan, L. K. Schaper, & S. Whetton (Eds.), Integrating and Connecting Care: Selected Papers from the 25th Australian National Health Informatics Conference (HIC 2017) (pp. 146-152). (Studies in Health Technology and Informatics; Vol. 239). IOS PRESS. https://doi.org/10.3233/978-1-61499-783-2-146