Debunking the “Mystical Condition” of Endometriosis: What People Living with Endometriosis Want You to Truly Understand

Natasha Brania; Hannah Adler; Emma Richardson; Cecilia Ng; Rebecca O’Hara; Stephanie Pirotta; Ruth Schubert; Libby Trainor Parker; Leesa Van Niekerk

doi:10.1080/23293691.2025.2525429

Debunking the “Mystical Condition” of Endometriosis: What People Living with Endometriosis Want You to Truly Understand

Natasha Brania, Hannah Adler, Emma Richardson, Cecilia Ng, Rebecca O’Hara, Stephanie Pirotta, Ruth Schubert, Libby Trainor Parker, Leesa Van Niekerk

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Abstract

Endometriosis is associated with reduced health-related quality of life and an increased need for engagement with healthcare providers and services. Using a pragmatic feminist lens we investigated the understanding and support individuals with endometriosis (n = 41) require from healthcare providers and significant others. Inductive, reflexive thematic analysis identified the importance of validation from significant others, a lack of understanding, the importance of multiple support avenues, and the dichotomy of the medical experience. Change is needed in the way we support those with endometriosis, including a greater emphasis on interdisciplinary approaches to care and access to information and resources for significant others.

Original language	English
Number of pages	17
Journal	Women's Reproductive Health
DOIs	https://doi.org/10.1080/23293691.2025.2525429
Publication status	E-pub ahead of print - 9 Jul 2025

Keywords

Endometriosis
medical practitioners
qualitative
significant others
understanding

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10.1080/23293691.2025.2525429Licence: CC BY-NC-ND

Published versionFinal published version, 2.13 MBLicence: CC BY-NC-ND

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Debunking the “Mystical Condition” of Endometriosis: What People Living with Endometriosis Want You to Truly Understand

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Keywords

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