Defining research and infrastructure priorities for cancer survivorship in Australia: a modified Delphi study

Fiona Crawford-Williams, Bogda Koczwara, Raymond J. Chan, Janette Vardy, Karolina Lisy, Julia Morris, Mahesh Iddawela, Gillian Mackay, Michael Jefford

Research output: Contribution to journalArticlepeer-review

Abstract

Purpose: The aim of this study was to establish research and infrastructure priorities for cancer survivorship. Methods: A two-round modified online Delphi study was completed by Australian experts in cancer survivorship. Initial priorities were generated from the literature and organized into four research categories: physiological outcomes, psychosocial outcomes, population groups, and health services; and one research infrastructure category. In round 1 (R1), panelists ranked the importance of 77 items on a five-point scale (not at all important to very important). In round 2 (R2), panelists ranked their top 5 priorities within each category. Panelists also specified the type of research needed, such as biological, exploratory, intervention development, or implementation, for the items within each research category. Results: Response rates were 76% (63/82) and 82% (68/82) respectively. After R1, 12 items were added, and 16 items combined or reworded. In R2, the highest prioritized research topics and the preferred type of research in each category were: biological research in cancer progression and recurrence; implementation and dissemination research for fear of recurrence; exploratory research for rare cancer types; and implementation research for quality of care topics. Data availability was listed as the most important priority for research infrastructure. Conclusions: This study has defined priorities that can be used to support coordinated action between researchers, funding bodies, and other key stakeholders. Designing future research which addresses these priorities will expand our ability to meet survivors’ diverse needs and lead to improved outcomes.

Original languageEnglish
Pages (from-to)3805-3815
Number of pages11
JournalSupportive Care in Cancer
Volume30
Issue number5
Early online date15 Jan 2022
DOIs
Publication statusPublished - May 2022

Keywords

  • Cancer research
  • Cancer survivorship
  • Delphi study
  • Research prioritization

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