TY - JOUR
T1 - Development and usability testing of a web-based psychosocial intervention for women living with metastatic breast cancer
T2 - Finding My Way-Advanced
AU - Beatty, Lisa
AU - Koczwara, Bogda
AU - Butow, Phyllis
AU - Turner, Jane
AU - Girgis, Afaf
AU - Schofield, Penelope
AU - Hulbert-Williams, Nicholas J.
AU - Kaambwa, Billingsley
AU - Kemp, Emma
PY - 2021/6
Y1 - 2021/6
N2 - Purpose: Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC. Methods: FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians, and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically. Results: Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), and with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the program, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets, and layout. Participants noted that having/making time for the intervention would be important to program engagement. Conclusions: Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing. Implications for Cancer Survivors: The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.
AB - Purpose: Women living with metastatic breast cancer (MBC) face significant distress and unmet needs, yet few resources have been developed for this population. The current study aimed to develop and evaluate the usability of Finding My Way-Advanced (FMW-A), a web-based self-guided psychosocial program for women with MBC. Methods: FMW-A was co-designed through (a) adapting an efficacious online program for people with curatively treated cancer and (b) receiving iterative rounds of input and feedback from a multidisciplinary co-design team including consumers, clinicians, and academics. A think-aloud protocol was then implemented to test the usability of the resulting 6-module prototype, with women living with MBC accessing up to three modules with an interviewer sitting along-side. Participants were recruited until saturation of themes occurred. Data were analysed thematically. Results: Participants (n=8) were, on average, 65.3 years old, mostly partnered (n=5), retired (n=6), post-secondary school educated (n=6), and with non-dependent children (n=7). Feedback fell into 6 themes. Positive feedback about FMW-A summarised the supportive and informative nature of the program, supplemented by comments about broadly relatable content. However, one size clearly did not fit all: within themes, diverging experiences emerged regarding navigability, worksheets, and layout. Participants noted that having/making time for the intervention would be important to program engagement. Conclusions: Usability testing indicated participants found content helpful and relatable, and identified significant pragmatic improvements to be made prior to further testing. Implications for Cancer Survivors: The development of FMW-A represents an important step in providing acceptable resources to support women living with MBC.
KW - Digital health
KW - Metastatic breast cancer
KW - Psychosocial intervention
UR - http://www.scopus.com/inward/record.url?scp=85102758393&partnerID=8YFLogxK
U2 - 10.1007/s11764-021-01019-5
DO - 10.1007/s11764-021-01019-5
M3 - Article
AN - SCOPUS:85102758393
SN - 1932-2259
VL - 15
SP - 403
EP - 409
JO - Journal of Cancer Survivorship
JF - Journal of Cancer Survivorship
IS - 3
ER -