Developmentally appropriate supported self-management for children and young people with chronic conditions: A consensus

Nicole Saxby, Karen Ford, Sean Beggs, Malcolm Battersby, Sharon Lawn

    Research output: Contribution to journalArticlepeer-review

    1 Citation (Scopus)

    Abstract

    Objective/s: To create a consensus list of self-management definitions, recommendations, and endpoints for children and young people (0–20 years) with chronic conditions.

    Methods: This study used a Delphi technique. Based on the number of relevant peer-reviewed publications, clinical academics were invited to participate in three survey rounds. Round one contained open-ended and multiple-choice questions eliciting general opinions on self-management. For round two, results were provided to the interdisciplinary expert panel as statements for rating their agreement using a 7-point Likert scale, with consensus predefined as moderately or extremely satisfied by >70% of participants. Statements not meeting consensus were re-presented in round three, with group feedback incorporated. Finalised statements informed creation of the ‘Partners in Health: Self-Management Consensus List for Children and Young People’.

    Results: Sixteen clinical academics participated: 12 completed round one; 14 completed round two; and 12 completed round three. Of 101 statements, 90 reached consensus, with statements separated into five developmentally appropriate groups. Statements covered broad self-management and self-management support domains including knowledge, involvement, monitoring/responding to symptoms, transition, impact, lifestyle, and support. Division of responsibility and autonomy were distinct themes.

    Conclusion and practice implications: This research provides consensus-based guidance for clinicians providing paediatric self-management support.

    Original languageEnglish
    Article number6416
    Pages (from-to)571-581
    Number of pages11
    JournalPatient Education and Counseling
    Volume103
    Issue number3
    DOIs
    Publication statusPublished - Mar 2020

    Keywords

    • Adolescence
    • Adolescents
    • Children
    • Chronic condition
    • Chronic disease
    • Clinical
    • Education
    • Self-management
    • Self-management support

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