Effects on the primary caregiver when a family member experiences acquired brain injury

This pilot study examines a random sample of 20 families with adults who have experienced acquired brain injury. Information about family structure pre and post accident is obtained by structured and open ended interview along with identification of the role of the primary caregiver. Analysis of the role of primary caregiver demonstrates the importance of the role of mothers and wives and the extent to which greatly increased responsibilities are acquired post accident. These increased responsibilities are a burden and alter the women's lifestyle such that their quality of life, like that of the person with brain injury, is severely impaired. This is a distinct but often unheralded outcome of acquired brain injury.