Empowering consumers as equal partners at scientific conferences in nephrology

Shyamsundar Muthuramalingam, Nicole Scholes-Robertson, Phil Carswell, Carolina Maistry, Kylie Paulo, Emily Duncanson

Research output: Contribution to journalEditorial

Abstract


Patients, caregivers and family members are being increasingly involved in research, including as equal delegates in scientific meetings and conferences.1 As the people that research aims to help and who are often involved as participants, we bring perspectives to these events that can enhance how research is performed, communicated and translated into care. Patients possess unique knowledge gained from their lived experiences of kidney disease and its treatments, as well as other life experiences and skills. Carers and family members offer yet another perspective, one of an observer and trusted advisor to the patient's journey, with their own research priorities and informational needs.
Original languageEnglish
Pages (from-to)879-880
Number of pages2
JournalNephrology
Volume25
Issue number12
DOIs
Publication statusPublished - Dec 2020
Externally publishedYes

Keywords

  • Empowerment
  • Nephrology
  • Patient Participation

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