TY - JOUR
T1 - Empowering consumers as equal partners at scientific conferences in nephrology
AU - Muthuramalingam, Shyamsundar
AU - Scholes-Robertson, Nicole
AU - Carswell, Phil
AU - Maistry, Carolina
AU - Paulo, Kylie
AU - Duncanson, Emily
PY - 2020/12
Y1 - 2020/12
N2 - Patients, caregivers and family members are being increasingly involved in research, including as equal delegates in scientific meetings and conferences.1 As the people that research aims to help and who are often involved as participants, we bring perspectives to these events that can enhance how research is performed, communicated and translated into care. Patients possess unique knowledge gained from their lived experiences of kidney disease and its treatments, as well as other life experiences and skills. Carers and family members offer yet another perspective, one of an observer and trusted advisor to the patient's journey, with their own research priorities and informational needs.
AB - Patients, caregivers and family members are being increasingly involved in research, including as equal delegates in scientific meetings and conferences.1 As the people that research aims to help and who are often involved as participants, we bring perspectives to these events that can enhance how research is performed, communicated and translated into care. Patients possess unique knowledge gained from their lived experiences of kidney disease and its treatments, as well as other life experiences and skills. Carers and family members offer yet another perspective, one of an observer and trusted advisor to the patient's journey, with their own research priorities and informational needs.
KW - Empowerment
KW - Nephrology
KW - Patient Participation
UR - http://www.scopus.com/inward/record.url?scp=85084699089&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/NHMRC/1092957
U2 - 10.1111/nep.13719
DO - 10.1111/nep.13719
M3 - Editorial
C2 - 32419279
AN - SCOPUS:85084699089
VL - 25
SP - 879
EP - 880
JO - Nephrology
JF - Nephrology
SN - 1320-5358
IS - 12
ER -