Empowering people affected by penile cancer: towards a model for supportive self-management

Catherine Paterson; Wayne Earle; David Homewood; Justin Chee; Henry Yao; Shomik Sengupta; Oluwaseyifunmi Andi Agbejule; Reegan Knowles; Carolyn Ee; Theo Niyonsenga; Ian D. Davis

doi:10.1038/s41443-025-01042-5

Empowering people affected by penile cancer: towards a model for supportive self-management

Catherine Paterson, Wayne Earle, David Homewood, Justin Chee, Henry Yao, Shomik Sengupta, Oluwaseyifunmi Andi Agbejule, Reegan Knowles, Carolyn Ee, Theo Niyonsenga, Ian D. Davis

Research output: Contribution to journal › Review article › peer-review

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Abstract

Improvements in the quality of penile cancer management are difficult due to the rarity of the condition and a limited evidence base for treatment decisions. Penile cancer and some of its highly morbid treatments can cause profound psychosexual and physical effects that negatively impact quality of life. Multidisciplinary interventions are required to equip patients with the support necessary to manage their emotional, physical, work, and lifestyle challenges to optimize health, well-being, and recovery. This paper outlines a model of supported self-management, which is a novel model of care for people with penile cancer to mitigate disease and treatment morbidity. (Figure presented.)

Original language	English
Number of pages	5
Journal	International Journal of Impotence Research
DOIs	https://doi.org/10.1038/s41443-025-01042-5
Publication status	E-pub ahead of print - 19 Mar 2025

Bibliographical note

Publisher Copyright:
© The Author(s) 2025.

Keywords

Quality of life
Therapeutics

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1038/s41443-025-01042-5Licence: CC BY

Final published versionFinal published version, 821 KBLicence: CC BY

Cite this

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title = "Empowering people affected by penile cancer: towards a model for supportive self-management",

abstract = "Improvements in the quality of penile cancer management are difficult due to the rarity of the condition and a limited evidence base for treatment decisions. Penile cancer and some of its highly morbid treatments can cause profound psychosexual and physical effects that negatively impact quality of life. Multidisciplinary interventions are required to equip patients with the support necessary to manage their emotional, physical, work, and lifestyle challenges to optimize health, well-being, and recovery. This paper outlines a model of supported self-management, which is a novel model of care for people with penile cancer to mitigate disease and treatment morbidity. (Figure presented.)",

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T2 - towards a model for supportive self-management

AU - Paterson, Catherine

AU - Earle, Wayne

AU - Homewood, David

AU - Chee, Justin

AU - Yao, Henry

AU - Sengupta, Shomik

AU - Agbejule, Oluwaseyifunmi Andi

AU - Knowles, Reegan

AU - Ee, Carolyn

AU - Niyonsenga, Theo

AU - Davis, Ian D.

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Y1 - 2025/3/19

N2 - Improvements in the quality of penile cancer management are difficult due to the rarity of the condition and a limited evidence base for treatment decisions. Penile cancer and some of its highly morbid treatments can cause profound psychosexual and physical effects that negatively impact quality of life. Multidisciplinary interventions are required to equip patients with the support necessary to manage their emotional, physical, work, and lifestyle challenges to optimize health, well-being, and recovery. This paper outlines a model of supported self-management, which is a novel model of care for people with penile cancer to mitigate disease and treatment morbidity. (Figure presented.)

AB - Improvements in the quality of penile cancer management are difficult due to the rarity of the condition and a limited evidence base for treatment decisions. Penile cancer and some of its highly morbid treatments can cause profound psychosexual and physical effects that negatively impact quality of life. Multidisciplinary interventions are required to equip patients with the support necessary to manage their emotional, physical, work, and lifestyle challenges to optimize health, well-being, and recovery. This paper outlines a model of supported self-management, which is a novel model of care for people with penile cancer to mitigate disease and treatment morbidity. (Figure presented.)

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U2 - 10.1038/s41443-025-01042-5

DO - 10.1038/s41443-025-01042-5

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SN - 0955-9930

JO - International Journal of Impotence Research

JF - International Journal of Impotence Research

ER -

Empowering people affected by penile cancer: towards a model for supportive self-management

Abstract

Bibliographical note

Keywords

UN SDGs

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