Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions

Stuart Ekberg; Alison Bowers; Natalie Bradford; Katie Ekberg; Melanie Rolfe; Norah Elvidge; Rebecca Cook; Sara-Jane Roberts; Christine Howard; Meera Agar; Renee Deleuil; Sara Fleming; Jenny Hynson; Ashka Jolly; Melissa Heywood; Simon Waring; Toni Rice; Annette Vickery

doi:10.1111/jpc.15851

Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions

Stuart Ekberg, Alison Bowers, Natalie Bradford, Katie Ekberg, Melanie Rolfe, Norah Elvidge, Rebecca Cook, Sara-Jane Roberts, Christine Howard, Meera Agar, Renee Deleuil, Sara Fleming, Jenny Hynson, Ashka Jolly, Melissa Heywood, Simon Waring, Toni Rice, Annette Vickery

Research output: Contribution to journal › Review article › peer-review

8 Citations (Scopus)

Abstract

Aim: Following the establishment of paediatric palliative care services over recent decades, this study sought to identify information to inform future policy and practice.

Methods: A rapid review using thematic synthesis was conducted to synthesise existing information about improving paediatric palliative care. Information was extracted in relation to key areas for investment and change: quality, access, advance care planning, skills, research, collaboration and community awareness.

Results: A total of 2228 literature sources were screened, with 369 included. Synthesised information identified clear ways to improve quality of care, access to care, advance care planning, and research and data collection. The synthesis identified knowledge gaps in understanding how to improve skills in paediatric palliative care, collaboration across Australian jurisdictions and community awareness.

Conclusions: The findings of this review bring together information from a vast range of sources to provide action-oriented information to target investment and change in paediatric palliative care over the coming decades.

Original language	English
Pages (from-to)	232-237
Number of pages	6
Journal	Journal of Paediatrics and Child Health
Volume	58
Issue number	2
DOIs	https://doi.org/10.1111/jpc.15851
Publication status	Published - 8 Feb 2022
Externally published	Yes

Keywords

delivery of health care
health policy
health services accessibility
paediatrics
palliative care
quality of health care

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1111/jpc.15851Licence: In Copyright

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Ekberg, S., Bowers, A., Bradford, N., Ekberg, K., Rolfe, M., Elvidge, N., Cook, R., Roberts, S.-J., Howard, C., Agar, M., Deleuil, R., Fleming, S., Hynson, J., Jolly, A., Heywood, M., Waring, S., Rice, T., & Vickery, A. (2022). Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions. Journal of Paediatrics and Child Health, 58(2), 232-237. https://doi.org/10.1111/jpc.15851

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abstract = "Aim: Following the establishment of paediatric palliative care services over recent decades, this study sought to identify information to inform future policy and practice. Methods: A rapid review using thematic synthesis was conducted to synthesise existing information about improving paediatric palliative care. Information was extracted in relation to key areas for investment and change: quality, access, advance care planning, skills, research, collaboration and community awareness. Results: A total of 2228 literature sources were screened, with 369 included. Synthesised information identified clear ways to improve quality of care, access to care, advance care planning, and research and data collection. The synthesis identified knowledge gaps in understanding how to improve skills in paediatric palliative care, collaboration across Australian jurisdictions and community awareness. Conclusions: The findings of this review bring together information from a vast range of sources to provide action-oriented information to target investment and change in paediatric palliative care over the coming decades.",

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author = "Stuart Ekberg and Alison Bowers and Natalie Bradford and Katie Ekberg and Melanie Rolfe and Norah Elvidge and Rebecca Cook and Sara-Jane Roberts and Christine Howard and Meera Agar and Renee Deleuil and Sara Fleming and Jenny Hynson and Ashka Jolly and Melissa Heywood and Simon Waring and Toni Rice and Annette Vickery",

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Ekberg, S, Bowers, A, Bradford, N, Ekberg, K, Rolfe, M, Elvidge, N, Cook, R, Roberts, S-J, Howard, C, Agar, M, Deleuil, R, Fleming, S, Hynson, J, Jolly, A, Heywood, M, Waring, S, Rice, T & Vickery, A 2022, 'Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions', Journal of Paediatrics and Child Health, vol. 58, no. 2, pp. 232-237. https://doi.org/10.1111/jpc.15851

TY - JOUR

T1 - Enhancing paediatric palliative care

T2 - A rapid review to inform continued development of care for children with life-limiting conditions

AU - Ekberg, Stuart

AU - Bowers, Alison

AU - Bradford, Natalie

AU - Ekberg, Katie

AU - Rolfe, Melanie

AU - Elvidge, Norah

AU - Cook, Rebecca

AU - Roberts, Sara-Jane

AU - Howard, Christine

AU - Agar, Meera

AU - Deleuil, Renee

AU - Fleming, Sara

AU - Hynson, Jenny

AU - Jolly, Ashka

AU - Heywood, Melissa

AU - Waring, Simon

AU - Rice, Toni

AU - Vickery, Annette

PY - 2022/2/8

Y1 - 2022/2/8

N2 - Aim: Following the establishment of paediatric palliative care services over recent decades, this study sought to identify information to inform future policy and practice. Methods: A rapid review using thematic synthesis was conducted to synthesise existing information about improving paediatric palliative care. Information was extracted in relation to key areas for investment and change: quality, access, advance care planning, skills, research, collaboration and community awareness. Results: A total of 2228 literature sources were screened, with 369 included. Synthesised information identified clear ways to improve quality of care, access to care, advance care planning, and research and data collection. The synthesis identified knowledge gaps in understanding how to improve skills in paediatric palliative care, collaboration across Australian jurisdictions and community awareness. Conclusions: The findings of this review bring together information from a vast range of sources to provide action-oriented information to target investment and change in paediatric palliative care over the coming decades.

AB - Aim: Following the establishment of paediatric palliative care services over recent decades, this study sought to identify information to inform future policy and practice. Methods: A rapid review using thematic synthesis was conducted to synthesise existing information about improving paediatric palliative care. Information was extracted in relation to key areas for investment and change: quality, access, advance care planning, skills, research, collaboration and community awareness. Results: A total of 2228 literature sources were screened, with 369 included. Synthesised information identified clear ways to improve quality of care, access to care, advance care planning, and research and data collection. The synthesis identified knowledge gaps in understanding how to improve skills in paediatric palliative care, collaboration across Australian jurisdictions and community awareness. Conclusions: The findings of this review bring together information from a vast range of sources to provide action-oriented information to target investment and change in paediatric palliative care over the coming decades.

KW - delivery of health care

KW - health policy

KW - health services accessibility

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KW - palliative care

KW - quality of health care

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Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions

Abstract

Keywords

UN SDGs

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