TY - JOUR
T1 - Exploring methodologies for establishing prevalence of deafblindness in children
T2 - A scoping review
AU - Meekins-Doherty, Leo
AU - Prain, Meredith
AU - Maxwell, Giorgina Elise
AU - Silveira, Susan
AU - Shepard, Emily
PY - 2023/12/11
Y1 - 2023/12/11
N2 - Deafblindness refers to a functional restriction of both hearing and vision, and presents at all ages. Determining prevalence of deafblindness, particularly in children, is challenging. The aim of this review was to explore and assess methodologies previously used to determine the prevalence of childhood deafblindness in both peer-reviewed and grey literature. Five databases were included in the search – Medline (OVID), PubMed, Scopus, CINAHL, and PsycINFO. Thirteen peer-reviewed articles and 11 documents from the grey literature met inclusion criteria for the review. In exploring the literature on deafblindness in children, it is evident that the characteristics and needs of this population are not well described. Approaches adopted by researchers show inconsistencies in how deafblindness is defined, assessed and diagnosed, making comparison challenging. To understand the needs of this group, it is critical that the childhood deafblind population is accurately described. Recommendations are made for the assessment of the population of children with deafblindness.
AB - Deafblindness refers to a functional restriction of both hearing and vision, and presents at all ages. Determining prevalence of deafblindness, particularly in children, is challenging. The aim of this review was to explore and assess methodologies previously used to determine the prevalence of childhood deafblindness in both peer-reviewed and grey literature. Five databases were included in the search – Medline (OVID), PubMed, Scopus, CINAHL, and PsycINFO. Thirteen peer-reviewed articles and 11 documents from the grey literature met inclusion criteria for the review. In exploring the literature on deafblindness in children, it is evident that the characteristics and needs of this population are not well described. Approaches adopted by researchers show inconsistencies in how deafblindness is defined, assessed and diagnosed, making comparison challenging. To understand the needs of this group, it is critical that the childhood deafblind population is accurately described. Recommendations are made for the assessment of the population of children with deafblindness.
KW - Children
KW - deafblind
KW - definitions
KW - methodologies
KW - prevalence
UR - http://www.scopus.com/inward/record.url?scp=85179336261&partnerID=8YFLogxK
U2 - 10.1177/02646196231212830
DO - 10.1177/02646196231212830
M3 - Article
SN - 0264-6196
JO - British Journal of Visual Impairment
JF - British Journal of Visual Impairment
ER -