Family quality of life from the perspective of older parents

N. S. Jokinen; Roy I. Brown

doi:10.1111/j.1365-2788.2005.00753.x

Family quality of life from the perspective of older parents

N. S. Jokinen, Roy I. Brown

Research output: Contribution to journal › Article › peer-review

76 Citations (Scopus)

Abstract

Background: Family quality of life is a relatively new field of study. Research has primarily concentrated on families of children and young adults with intellectual disability (ID).

Method: This project explored the concept of family quality of life from the perspective of older parents who had adult children with ID aged 40+. Focus groups, individual interviews and surveys investigated family issues related to maintaining or enhancing family quality of life.

Results: Parents reported positive aspects of lifelong caregiving and quality of family life. There were concerns for the health of all family members, the social lives of their adult child, long-term living arrangements and the role of siblings.

Conclusion: Current family and service issues that need to be addressed are related to funding and finances, staffing, and the need to adapt to age-related needs.

Original language	English
Pages (from-to)	789-793
Number of pages	5
Journal	Journal of Intellectual Disability Research
Volume	49
Issue number	10
Early online date	13 Sept 2005
DOIs	https://doi.org/10.1111/j.1365-2788.2005.00753.x
Publication status	Published - Oct 2005
Externally published	Yes

Keywords

Ageing
Family
Intellectual disability
Quality of life

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Family quality of life from the perspective of older parents

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Keywords

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