From ‘Parent’ to ‘Expert’: How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access

Amelia Edwards, Christine Brebner, Paul McCormack, Colin MacDougall

Research output: Contribution to journalArticlepeer-review

8 Citations (Scopus)

Abstract

Parents of children with Autism Spectrum Disorder are responsible for deciding which interventions to implement with their child. There is limited research examining parental decision-making with regards to intervention approaches. A constructivist grounded theory methodology was implemented in this study. Semi-structured interviews were undertaken with 14 participants from 12 family units. Data collection and analysis occurred concurrently, allowing a grounded theory to be constructed. Parental decision-making was influenced by many factors, arranged into seven core categories (values, experience, information, motivation, understanding, needs and logistics). Decision-making evolved over time, as parents transformed from ‘parent’ to ‘expert’. The results of this study provide an insight into parental decision-making, which has implications for the support provided to parents by health professionals.

Original languageEnglish
Pages (from-to)2122-2138
Number of pages17
JournalJournal of Autism and Developmental Disorders
Volume48
Issue number6
Early online date2018
DOIs
Publication statusPublished - 1 Jun 2018

Keywords

  • Autism spectrum disorder
  • Decision-making
  • Intervention
  • Parents
  • Qualitative research

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