Abstract
Objectives/Purpose: Codesign (1) an online resource hub of Australian pancreatobiliary cancer online resources and services, and (2) a supportive care navigation tool for people diagnosed with pancreatobiliary cancer and their caregivers at Flinders Medical Centre in Adelaide, South Australia.
Sample and Setting: Participants were recruited from Flinders Medical Centre and included current or recent pancreatic or biliary cancer patients, their caregivers, and allied health and nursing staff involved in supportive care.
Procedures: Codesign involved focus groups and interviews. For the online resource hub, cancer survivors and caregivers identified and prioritised the topics and provided feedback on the layout. Think Aloud testing will be conducted to assess acceptability. For the supportive care navigation tool, allied
health and nursing staff, and the research team identified local and appropriate supportive care services from Flinders Medical Centre, Flinders University, Cancer Council SA and primary care, mapped against cancer-related needs. The navigation tool design was also discussed.
Results: Three pancreatic cancer patients (1 male, 1 nonresectable), three caregivers (2 males) and six hospital staff (nurse, physiotherapist, occupational therapist, rehabilitation physician and 2 social workers) participated. The Pancreatic and Biliary Cancer Resource Hub website includes 14 topic areas (e.g.,
Diet and Food). Each topic area links to 3–5 online resources from Australian cancer organisations (e.g. Pankind and Cancer Councils) and other organisations/government departments (e.g., Advance Care Planning Australia). The supportive care navigation tool has four sections: (1) Screening section—Distress Thermometer and Checklist, (2) Supportive Care Services Directory, (3) Clinician Documentation and (4) Patient Take Home Summary.
Conclusion and Clinical Implications: The online resource hub and supportive care navigation tool may reduce unmet needs, facilitate timely access to appropriate information and supportive care services, and improve outcomes for people diagnosed with pancreatobiliary cancer and their caregivers. Future evaluation will determine their impact.
Sample and Setting: Participants were recruited from Flinders Medical Centre and included current or recent pancreatic or biliary cancer patients, their caregivers, and allied health and nursing staff involved in supportive care.
Procedures: Codesign involved focus groups and interviews. For the online resource hub, cancer survivors and caregivers identified and prioritised the topics and provided feedback on the layout. Think Aloud testing will be conducted to assess acceptability. For the supportive care navigation tool, allied
health and nursing staff, and the research team identified local and appropriate supportive care services from Flinders Medical Centre, Flinders University, Cancer Council SA and primary care, mapped against cancer-related needs. The navigation tool design was also discussed.
Results: Three pancreatic cancer patients (1 male, 1 nonresectable), three caregivers (2 males) and six hospital staff (nurse, physiotherapist, occupational therapist, rehabilitation physician and 2 social workers) participated. The Pancreatic and Biliary Cancer Resource Hub website includes 14 topic areas (e.g.,
Diet and Food). Each topic area links to 3–5 online resources from Australian cancer organisations (e.g. Pankind and Cancer Councils) and other organisations/government departments (e.g., Advance Care Planning Australia). The supportive care navigation tool has four sections: (1) Screening section—Distress Thermometer and Checklist, (2) Supportive Care Services Directory, (3) Clinician Documentation and (4) Patient Take Home Summary.
Conclusion and Clinical Implications: The online resource hub and supportive care navigation tool may reduce unmet needs, facilitate timely access to appropriate information and supportive care services, and improve outcomes for people diagnosed with pancreatobiliary cancer and their caregivers. Future evaluation will determine their impact.
| Original language | English |
|---|---|
| Article number | 648 |
| Pages (from-to) | 294-295 |
| Number of pages | 2 |
| Journal | Asia-Pacific Journal of Clinical Oncology |
| Volume | 21 |
| Issue number | S4 |
| DOIs | |
| Publication status | Published - Nov 2025 |
| Event | 2025 COSA-IPOS Annual Scientific Meeting: Optimising care, optimising outcomes Partnering to improve outcomes for all - Adelaide Convention Centre, Adelaide, Australia Duration: 11 Nov 2025 → 14 Nov 2025 https://anzchog.org/2025-cosa-ipos-annual-scientific-meeting/ |
UN SDGs
This output contributes to the following UN Sustainable Development Goals (SDGs)
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SDG 3 Good Health and Well-being
Keywords
- Pancreatobiliary cancer
- caregivers
- support networks
- targeted care
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