Giving a Voice to Marginalised Groups for Health Care Decision Making

Richard De Abreu Lourenço, Nancy Devlin, Kirsten Howard, Jason J. Ong, Julie Ratcliffe, Jo Watson, Esther Willing, Elisabeth Huynh

Research output: Contribution to journalComment/debate

Abstract

Internationally, there is broader inclusion of the consumer voice in decisions about healthcare resource allocation; initiatives like the Strategy for Patient-Oriented Research (SPOR) in Canada and INVOLVE in the UK focus on expanded consumer representation in forming and enacting health policy [1, 2].
In part, the success of these initiatives will depend on inclusive representation. Representation reflects both who is given a voice and whose preferences are captured in health care decision making and policy setting [3,4,5]. For marginalised groups (those who are socially excluded, find it difficult to be heard or who researchers struggle to reach), achieving representation is a challenge. Challenges arise in asking the right people the right questions and doing so in a manner that reflects and captures their values.
Original languageEnglish
Number of pages6
JournalPatient
DOIs
Publication statusE-pub ahead of print - 1 Oct 2020

Keywords

  • resource allocation
  • healthcare
  • consumer voice
  • Marginalised Groups

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