Giving a Voice to Marginalised Groups for Health Care Decision Making

Richard De Abreu Lourenço; Nancy Devlin; Kirsten Howard; Jason J. Ong; Julie Ratcliffe; Jo Watson; Esther Willing; Elisabeth Huynh

doi:10.1007/s40271-020-00456-1

Giving a Voice to Marginalised Groups for Health Care Decision Making

Richard De Abreu Lourenço, Nancy Devlin, Kirsten Howard, Jason J. Ong, Julie Ratcliffe, Jo Watson, Esther Willing, Elisabeth Huynh

Research output: Contribution to journal › Comment/debate

8 Citations (Scopus)

Abstract

Internationally, there is broader inclusion of the consumer voice in decisions about healthcare resource allocation; initiatives like the Strategy for Patient-Oriented Research (SPOR) in Canada and INVOLVE in the UK focus on expanded consumer representation in forming and enacting health policy [1, 2].
In part, the success of these initiatives will depend on inclusive representation. Representation reflects both who is given a voice and whose preferences are captured in health care decision making and policy setting [3,4,5]. For marginalised groups (those who are socially excluded, find it difficult to be heard or who researchers struggle to reach), achieving representation is a challenge. Challenges arise in asking the right people the right questions and doing so in a manner that reflects and captures their values.

Original language	English
Pages (from-to)	5-10
Number of pages	6
Journal	Patient
Volume	14
Issue number	1
Early online date	1 Oct 2020
DOIs	https://doi.org/10.1007/s40271-020-00456-1
Publication status	Published - Jan 2021

Keywords

resource allocation
healthcare
consumer voice
Marginalised Groups

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1007/s40271-020-00456-1Licence: In Copyright

Cite this

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AU - De Abreu Lourenço, Richard

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AU - Howard, Kirsten

AU - Ong, Jason J.

AU - Ratcliffe, Julie

AU - Watson, Jo

AU - Willing, Esther

AU - Huynh, Elisabeth

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Giving a Voice to Marginalised Groups for Health Care Decision Making

Abstract

Keywords

UN SDGs

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