Abstract
Internationally, there is broader inclusion of the consumer voice in decisions about healthcare resource allocation; initiatives like the Strategy for Patient-Oriented Research (SPOR) in Canada and INVOLVE in the UK focus on expanded consumer representation in forming and enacting health policy [1, 2].
In part, the success of these initiatives will depend on inclusive representation. Representation reflects both who is given a voice and whose preferences are captured in health care decision making and policy setting [3,4,5]. For marginalised groups (those who are socially excluded, find it difficult to be heard or who researchers struggle to reach), achieving representation is a challenge. Challenges arise in asking the right people the right questions and doing so in a manner that reflects and captures their values.
In part, the success of these initiatives will depend on inclusive representation. Representation reflects both who is given a voice and whose preferences are captured in health care decision making and policy setting [3,4,5]. For marginalised groups (those who are socially excluded, find it difficult to be heard or who researchers struggle to reach), achieving representation is a challenge. Challenges arise in asking the right people the right questions and doing so in a manner that reflects and captures their values.
| Original language | English |
|---|---|
| Pages (from-to) | 5-10 |
| Number of pages | 6 |
| Journal | Patient |
| Volume | 14 |
| Issue number | 1 |
| Early online date | 1 Oct 2020 |
| DOIs |
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| Publication status | Published - Jan 2021 |
Keywords
- resource allocation
- healthcare
- consumer voice
- Marginalised Groups