‘Going between worlds’: Travelling with children with complex needs

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    Abstract

    In this ethically approved hermeneutic phenomenological study conducted in Ireland, mothers’ experiences in caring for children with complex needs were explored. The sample comprised mothers (n = 17) at home caring for children with complex needs. Data were analysed from multiple interviews (n = 48) and diary records (n = 11). Care is provided in a going between world of travel. Providing care when travelling is challenging, and all journeys require careful preparation and pre-emptive care. Few unnecessary journeys are undertaken. Unnecessary travelling could be avoided by careful and coordinated service planning.

    Original languageEnglish
    Pages (from-to)293-303
    Number of pages11
    JournalJournal of Child Health Care
    Volume19
    Issue number3
    Early online date2015
    DOIs
    Publication statusPublished - 7 Sep 2015

    Keywords

    • Caregiving
    • complex needs
    • disability
    • home care
    • mothers
    • travel

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