Health professionals' perceptions of feeding-related quality of life in children with quadriplegic cerebral palsy

Angela M. Morrow, Susan Quine, Jonathan C. Craig

Research output: Contribution to journalArticle

10 Citations (Scopus)

Abstract

Abstract
BACKGROUND:

Our aim was to identify the major determinants of feeding-related quality of life (QoL) in children with quadriplegic cerebral palsy (QCP) from the perspective of health professionals to provide a framework for comprehensive clinical evaluation of health status in this group.
METHODS:

A trained facilitator conducted five semi-structured focus groups during September and November 2003. Participants were recruited through the two paediatric hospitals in Sydney and community-based services, and included general and specialist paediatricians (n = 18), nurses (n = 15) and allied health professionals (n = 13), with an 80% response rate. All sessions were audio- and videotaped. NVIVO software was used to facilitate thematic analysis of the transcribed audiotapes.
RESULTS:

Responses clustered into five themes: delivery of health services, parent-child interaction, the child's physical and emotional well-being, and social participation. Participants thought the QoL of child and parent was inseparable. Parent-child interaction, delivery of services and physical well-being were the topics which prompted most participant interaction. These findings did not vary across disciplines.
CONCLUSIONS:

Health professionals identified five domains which provide a framework within which clinicians may comprehensively evaluate the health status of children with QCP and feeding difficulties. These five domains may also be used to inform a new feeding-related QoL instrument for use in this group of patients.
Original languageEnglish
Pages (from-to)529-538
Number of pages10
JournalChild: Care, Health and Development
Volume33
Issue number5
DOIs
Publication statusPublished - Sep 2007
Externally publishedYes

Keywords

  • cerebral palsy
  • feeding
  • paediatric
  • quality of life

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