Health Surveillance and People with Intellectual Disabilities

Chris Hatton, Alexandra Bonardi, Eric Emerson, Michael H. Fox, Gyles Glover, Gloria L. Krahn, Hélène Ouellette-Kuntz, Sue Turner

Research output: Chapter in Book/Report/Conference proceedingChapterpeer-review

3 Citations (Scopus)

Abstract

In this chapter we use three case studies (from the USA, Canada, and England) to frame a discussion of key conceptual and methodological issues associated with health-surveillance programs for people with intellectual disabilities. These include the challenges associated with (1) identifying people with intellectual disabilities in administrative databases; (2) identifying people with intellectual disabilities in population-based surveys through data linkage and cognitive testing and self- or informant report; (3) sampling issues; (4) the use of specific intellectual disability surveys; and (5) challenges in measuring health. We conclude with a discussion of the relationship between health surveillance and health policy.

Original languageEnglish
Title of host publicationInternational Review of Research in Developmental Disabilities
EditorsChris Hatton, Eric Emerson
Place of PublicationUnited State of America
PublisherAcademic Press
Chapter4
Pages73-114
Number of pages42
Volume48
ISBN (Print)9780128022917
DOIs
Publication statusPublished - 2015
Externally publishedYes

Publication series

NameInternational Review of Research in Developmental Disabilities
ISSN (Print)2211-6095

Keywords

  • Developmental disabilities
  • Health
  • Health measurement
  • Health surveillance
  • Intellectual disability

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