@inbook{b48417d04725402083bbf6a0b2bda452,
title = "Health Surveillance and People with Intellectual Disabilities",
abstract = "In this chapter we use three case studies (from the USA, Canada, and England) to frame a discussion of key conceptual and methodological issues associated with health-surveillance programs for people with intellectual disabilities. These include the challenges associated with (1) identifying people with intellectual disabilities in administrative databases; (2) identifying people with intellectual disabilities in population-based surveys through data linkage and cognitive testing and self- or informant report; (3) sampling issues; (4) the use of specific intellectual disability surveys; and (5) challenges in measuring health. We conclude with a discussion of the relationship between health surveillance and health policy.",
keywords = "Developmental disabilities, Health, Health measurement, Health surveillance, Intellectual disability",
author = "Chris Hatton and Alexandra Bonardi and Eric Emerson and Fox, \{Michael H.\} and Gyles Glover and Krahn, \{Gloria L.\} and H{\'e}l{\`e}ne Ouellette-Kuntz and Sue Turner",
year = "2015",
doi = "10.1016/bs.irrdd.2015.04.002",
language = "English",
isbn = "9780128022917",
volume = "48",
series = "International Review of Research in Developmental Disabilities",
publisher = "Academic Press",
pages = "73--114",
editor = "Chris Hatton and Eric Emerson",
booktitle = "International Review of Research in Developmental Disabilities",
}