How do family-caregivers of patients with advanced cancer provide symptom self-management support? A qualitative study

Ruth Pethybridge, Laisa Teleni, Raymond Javan Chan

Research output: Contribution to journalArticlepeer-review

1 Citation (Scopus)

Abstract

Purpose: The family-caregiver role is of critical importance to the success of symptom-related self-management of patients with advanced cancer. This study examined the perspectives of patients and family-caregivers regarding the role of the family-caregiver in symptom-related self-management support ( SMS). Methods: Semi-structured interviews were conducted in patients with advanced cancer experiencing significant symptom burden and their family-caregivers. An inductive content analysis approach was used to analyse data. Results: Eleven patients and ten family caregivers were included. Identified themes were 1) engaging in specific symptom-related SMS; 2) interacting with health care professionals; and 3) balancing patient need versus expectation. These themes were applicable to both the family-caregiver and patient cohorts, regardless of the individual symptom profile of each patient. Conclusions: The role of family-caregivers of patients with advanced cancer is complex and varied in providing symptom-related SMS at home; often requiring family-caregivers to have diverse knowledge and skills in the management of a range of cancer-related symptoms. Health care professionals can support family-caregivers by anticipating needs, tailoring evidence-based information to those needs, and ensuring family-caregivers have an appropriate contact point for advice or help.

Original languageEnglish
Article number101795
Number of pages7
JournalEuropean Journal of Oncology Nursing
Volume48
DOIs
Publication statusPublished - Oct 2020
Externally publishedYes

Keywords

  • Advanced cancer
  • Family-caregiver
  • Interview
  • Qualitative
  • Self-management support
  • Symptom

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