How do people with dementia and family carers value dementia specific quality of life states?: An explorative “Think Aloud” study

Julie Ratcliffe; Claire Louise Hutchinson; Rachel Milte; Kim‐Huong Nguyen; Alyssa Welch Welsh; Tessa Caporale; Megan Corlis; Tracy Comans

doi:10.1111/ajag.12646

How do people with dementia and family carers value dementia specific quality of life states? An explorative “Think Aloud” study

Julie Ratcliffe, Claire Louise Hutchinson, Rachel Milte, Kim‐Huong Nguyen, Alyssa Welch Welsh, Tessa Caporale, Megan Corlis, Tracy Comans

College of Nursing and Health Sciences

Research output: Contribution to journal › Article › peer-review

13 Citations (Scopus)

45 Downloads (Pure)

Abstract

Objective: To investigate the decision-making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia-specific quality of life states. Methods: People with dementia (n = 13) and family carers (n = 14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment (DCE) and Best Worst Scaling (BWS). Participants were encouraged to explain their reasoning using a “Think Aloud” approach. Results: People with dementia and family carers adopted a range of decision-making strategies including “anchoring” the presented states against current quality of life, or simplifying the decision-making by focusing on the sub-set of attributes deemed most important. Overall, there was strong evidence of task engagement for BWS and DCE. Conclusions: Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation.

Original language	English
Pages (from-to)	75-82
Number of pages	8
Journal	Australasian Journal on Ageing
Volume	38
Issue number	S2
DOIs	https://doi.org/10.1111/ajag.12646
Publication status	Published - 1 Sept 2019

Bibliographical note

(CC-BY 4.0) Open Access article licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license (http://creativecommons.org/licenses/by/4.0)

Keywords

dementia
economic evaluation
health status
patient preference
quality-adjusted life years

Access to Document

10.1111/ajag.12646Licence: CC BY

Ratcliffe_How_P2019Final published version, 355 KBLicence: CC BY

Cite this

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title = "How do people with dementia and family carers value dementia specific quality of life states?: An explorative “Think Aloud” study",

abstract = "Objective: To investigate the decision-making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia-specific quality of life states. Methods: People with dementia (n = 13) and family carers (n = 14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment (DCE) and Best Worst Scaling (BWS). Participants were encouraged to explain their reasoning using a “Think Aloud” approach. Results: People with dementia and family carers adopted a range of decision-making strategies including “anchoring” the presented states against current quality of life, or simplifying the decision-making by focusing on the sub-set of attributes deemed most important. Overall, there was strong evidence of task engagement for BWS and DCE. Conclusions: Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation.",

keywords = "dementia, economic evaluation, health status, patient preference, quality-adjusted life years",

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AU - Nguyen, Kim‐Huong

AU - Welsh, Alyssa Welch

AU - Caporale, Tessa

AU - Corlis, Megan

AU - Comans, Tracy

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N2 - Objective: To investigate the decision-making processes applied by people with dementia and family carers participating in using health economic approaches to value dementia-specific quality of life states. Methods: People with dementia (n = 13) and family carers (n = 14) participated in valuing quality of life states using two health economic approaches: Discrete Choice Experiment (DCE) and Best Worst Scaling (BWS). Participants were encouraged to explain their reasoning using a “Think Aloud” approach. Results: People with dementia and family carers adopted a range of decision-making strategies including “anchoring” the presented states against current quality of life, or simplifying the decision-making by focusing on the sub-set of attributes deemed most important. Overall, there was strong evidence of task engagement for BWS and DCE. Conclusions: Health economic valuation approaches can be successfully applied with people with dementia and family carers. These data can inform the assessment of benefits from their perspectives for incorporation within economic evaluation.

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