How the General Data Protection Regulation changes the rules for scientific research

Marcello Lenca; James Scheibner; Agata Ferretti; Felix Gille; Julia Amann; Joanna Sleigh; Alessandro Blasimme; Effy Vayena

doi:10.2861/17421

How the General Data Protection Regulation changes the rules for scientific research

Marcello Lenca, James Scheibner, Agata Ferretti, Felix Gille, Julia Amann, Joanna Sleigh, Alessandro Blasimme, Effy Vayena

Research output: Book/Report › Commissioned report

Abstract

The implementation of the General Data Protection Regulation (GDPR) raises a series of challenges for scientific research, in particular for research that is dependent on data. This study comprehensively investigates the promises and challenges associated with the implementation of the GDPR in the scientific domain, with a special focus on the impact of the new rights and obligations enshrined in the GDPR on the design and conduct of scientific research. Furthermore, the study examines the adequacy of the GDPR's derogations for scientific research in terms of safeguarding scientific freedom and technological progress. The study also provides policy options that delineate a pathway towards enhancing rather than stifling research, and facilitating privacy-preserving data-driven research under the provisions of the GDPR.

Original language	English
Place of Publication	Brussels
Publisher	European Parliament
Number of pages	105
ISBN (Print)	978-92-846-5045-3
DOIs	https://doi.org/10.2861/17421
Publication status	Published - Jul 2019
Externally published	Yes

Keywords

General Data Protection Regulation
scientific research
scientific freedom
privacy-preserving data-driven research

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abstract = "The implementation of the General Data Protection Regulation (GDPR) raises a series of challenges for scientific research, in particular for research that is dependent on data. This study comprehensively investigates the promises and challenges associated with the implementation of the GDPR in the scientific domain, with a special focus on the impact of the new rights and obligations enshrined in the GDPR on the design and conduct of scientific research. Furthermore, the study examines the adequacy of the GDPR's derogations for scientific research in terms of safeguarding scientific freedom and technological progress. The study also provides policy options that delineate a pathway towards enhancing rather than stifling research, and facilitating privacy-preserving data-driven research under the provisions of the GDPR.",

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AU - Lenca, Marcello

AU - Scheibner, James

AU - Ferretti, Agata

AU - Gille, Felix

AU - Amann, Julia

AU - Sleigh, Joanna

AU - Blasimme, Alessandro

AU - Vayena, Effy

PY - 2019/7

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N2 - The implementation of the General Data Protection Regulation (GDPR) raises a series of challenges for scientific research, in particular for research that is dependent on data. This study comprehensively investigates the promises and challenges associated with the implementation of the GDPR in the scientific domain, with a special focus on the impact of the new rights and obligations enshrined in the GDPR on the design and conduct of scientific research. Furthermore, the study examines the adequacy of the GDPR's derogations for scientific research in terms of safeguarding scientific freedom and technological progress. The study also provides policy options that delineate a pathway towards enhancing rather than stifling research, and facilitating privacy-preserving data-driven research under the provisions of the GDPR.

AB - The implementation of the General Data Protection Regulation (GDPR) raises a series of challenges for scientific research, in particular for research that is dependent on data. This study comprehensively investigates the promises and challenges associated with the implementation of the GDPR in the scientific domain, with a special focus on the impact of the new rights and obligations enshrined in the GDPR on the design and conduct of scientific research. Furthermore, the study examines the adequacy of the GDPR's derogations for scientific research in terms of safeguarding scientific freedom and technological progress. The study also provides policy options that delineate a pathway towards enhancing rather than stifling research, and facilitating privacy-preserving data-driven research under the provisions of the GDPR.

KW - General Data Protection Regulation

KW - scientific research

KW - scientific freedom

KW - privacy-preserving data-driven research

U2 - 10.2861/17421

DO - 10.2861/17421

M3 - Commissioned report

SN - 978-92-846-5045-3

BT - How the General Data Protection Regulation changes the rules for scientific research

PB - European Parliament

CY - Brussels

ER -

How the General Data Protection Regulation changes the rules for scientific research

Abstract

Keywords

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