How to Work Effectively with Stroke Survivors Throughout the Research Process

Stroke survivors have lived experience of the impacts of stroke on daily life and health care system access. Accordingly, they can contribute crucial perspectives to research projects. This aligns with the growing awareness of the importance of engaging with health care users throughout the research process, characterized by the phrase Nothing about us, without us. Engaging with (ie, working with in ways other than researcher-participant relationship) people with lived experience throughout the research process can improve research value by ensuring that the research is applicable and appropriate to the needs of end users. Furthermore, people have a right to shape the research that will impact them.