TY - JOUR
T1 - Identifying strategies for disseminating research to patients with chronic kidney disease and caregivers
T2 - a workshop report
AU - Hughes, Anastasia
AU - Scholes-Robertson, Nicole
AU - Coghlan, Dale
AU - Wu, Rebecca
AU - Amir, Noa
AU - Candler, Hayley
AU - Cashmore, Brydee
AU - Cho, Yeoungjee
AU - Craig, Jonathan C.
AU - Cazzolli, Rosanna
AU - Kholmurodova, Feruza
AU - Guha, Chandana
AU - Hawley, Carmel M.
AU - Hiyare, Amandi
AU - Howell, Martin
AU - Jesudason, Shilpanjali
AU - Johnson, David W.
AU - Keuskamp, Dominic
AU - Manera, Karine
AU - Mazis, Jasmin
AU - McDonald, Stephen
AU - Muthuramalingam, Shyamsundar
AU - Silva, Javier Recabarren
AU - Sluiter, Amanda
AU - Teixeira-Pinto, Armando
AU - Tunnicliffe, David J.
AU - van Zwieten, Anita
AU - Velayudham, Pushparaj
AU - Viecelli, Andrea K.
AU - Wong, Germaine
AU - Jaure, Allison
AU - workshop investigators
AU - Sluiter, Amanda
AU - Yip, Adela
AU - Kennard, Alice
AU - Blackley, Allan
AU - Dominello, Amanda
AU - Williamson, Amber
AU - Luchterhand, Amy
AU - Currey, Andrew
AU - Rejuso, Angela
AU - Kieu, Anh
AU - Tien, Anh Tho
AU - Conway, Annie
AU - Robson, Breonny
AU - Rojas-Canales, Darling
AU - Palamuthusingam, Dharmenaan
AU - Sabanayagam, Dharshana
AU - Johns, Effie
AU - Hewawasam, Erandi
AU - Boroumand, Farzaneh
AU - Lord, Felicity
AU - Carlisle, Fiona
AU - Tuthill, Fleur
AU - Irish, Georgina
AU - Radisic, Gorjana
AU - Shepherd, Heather
AU - Pleass, Henry
AU - Roberts, Ieyesha
AU - Mewburn, Irene
AU - Haklar, Isabelle
AU - Colquhoun, Janelle
AU - Kelly, Janet
AU - Brown, Jill
AU - Roberts, Joy
AU - Strudwick, Kathy
AU - Nguyen, Kim
AU - Torrisi, Luca
AU - Reicher, Madeleine
AU - Rapisardi, Madeleine
AU - Fernandez, Melissa
AU - Michael, Collins
AU - Brown, Natalie
AU - Boulter, Nicky
AU - Li, Rachel
AU - Le Leu, Richard
AU - Dale, Robert
AU - Jahan, Sadia
AU - Spence, Sally
AU - Bateman, Samantha
AU - Viswanathan, Seethalakshmi
AU - Kim, Siah
AU - En Ying Chu, Verlencia
AU - SInka, Victoria
AU - Diwan, Vishal
AU - Hoy, Wendy
PY - 2025/6
Y1 - 2025/6
N2 - Health research results are primarily disseminated through scientific peer-reviewed journals and are not readily accessible to patients and caregivers, which can impede informed decision-making and limit the impact of research on patient outcomes. The aim of the workshop was to identify strategies to disseminate research in chronic kidney disease (CKD) to patients and caregivers. The workshop involved patients, caregivers (n = 27), and health professionals (n = 54) from Australia (10 breakout groups). The transcripts were thematically analyzed. Three themes (strategies) were identified. Generating interest encompassed emphasizing the benefits and impacts of research, using engaging modes of delivery, increasing visibility in clinical settings, and harnessing popular culture. Eliminating barriers to access included ensuring free access to journal articles, translating into different languages, providing plain-language summaries, considering convenience in the context of CKD-related burdens, and maximizing exposure. Demonstrating trustworthiness and repute entailed filtering for high-quality information and propagating through familiar networks and community-based channels. Ensuring ease of access to research, drawing attention, and prompting motivation to engage in research, and instilling confidence in patients about the quality of research may support effective dissemination. Adopting patient-prioritized models to increase translation of research may support shared decision-making in practice and improve care and patient outcomes.
AB - Health research results are primarily disseminated through scientific peer-reviewed journals and are not readily accessible to patients and caregivers, which can impede informed decision-making and limit the impact of research on patient outcomes. The aim of the workshop was to identify strategies to disseminate research in chronic kidney disease (CKD) to patients and caregivers. The workshop involved patients, caregivers (n = 27), and health professionals (n = 54) from Australia (10 breakout groups). The transcripts were thematically analyzed. Three themes (strategies) were identified. Generating interest encompassed emphasizing the benefits and impacts of research, using engaging modes of delivery, increasing visibility in clinical settings, and harnessing popular culture. Eliminating barriers to access included ensuring free access to journal articles, translating into different languages, providing plain-language summaries, considering convenience in the context of CKD-related burdens, and maximizing exposure. Demonstrating trustworthiness and repute entailed filtering for high-quality information and propagating through familiar networks and community-based channels. Ensuring ease of access to research, drawing attention, and prompting motivation to engage in research, and instilling confidence in patients about the quality of research may support effective dissemination. Adopting patient-prioritized models to increase translation of research may support shared decision-making in practice and improve care and patient outcomes.
KW - caregivers
KW - CKD
KW - consumers
KW - dissemination
KW - kidney disease
KW - patients
UR - http://www.scopus.com/inward/record.url?scp=105000073476&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/NHMRC/1173941
U2 - 10.1016/j.kint.2025.01.020
DO - 10.1016/j.kint.2025.01.020
M3 - Article
C2 - 39922376
AN - SCOPUS:105000073476
SN - 0085-2538
VL - 107
SP - 985
EP - 993
JO - Kidney International
JF - Kidney International
IS - 6
ER -
