Indigenous Data Sovereignty and Governance: The Australian Traumatic Brain Injury National Data Project

Courtney Ryder, Roland Wilson, Shane D'Angelo, Gerard M. O'Reilly, Biswadev Mitra, Kate Hunter, Yen Kim, Nick Rushworth, Jin Tee, Delia Hendrie, Mark Fitzgerald, Kate Curtis

Research output: Contribution to journalLetterpeer-review

Abstract

To the Editor — Data exist in a range of forms (open, big, reuse, linkage, sharing, etc.) and are accessible by various mining techniques (machine learning, artificial intelligence, etc.). Indigenous data can be defined as data in any format or medium that contain information and/or knowledge on Indigenous peoples as individuals or a collective. Indigenous Data Sovereignty and Governance structures are essential, as they ensure that the sovereign rights of First Nations are respected, considered and acted upon. Indigenous Data Sovereignty focuses on data self-determination for Indigenous peoples, by providing autonomy over the “collection, access, analysis, interpretation, management, dissemination and re-use” of such data. Indigenous Data Governance encompasses formal policies and procedures that support this data self-determination...
Original languageEnglish
Pages (from-to)888-889
Number of pages2
JournalNATURE MEDICINE
Volume28
Issue number5
Early online date19 Apr 2022
DOIs
Publication statusPublished - May 2022

Keywords

  • Indigenous Data Sovereignty and Governance
  • Indigenous Data Governance
  • Cultural heritage
  • Australia

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