Indigenous Data Sovereignty and Governance: The Australian Traumatic Brain Injury National Data Project

To the Editor — Data exist in a range of forms (open, big, reuse, linkage, sharing, etc.) and are accessible by various mining techniques (machine learning, artificial intelligence, etc.). Indigenous data can be defined as data in any format or medium that contain information and/or knowledge on Indigenous peoples as individuals or a collective. Indigenous Data Sovereignty and Governance structures are essential, as they ensure that the sovereign rights of First Nations are respected, considered and acted upon. Indigenous Data Sovereignty focuses on data self-determination for Indigenous peoples, by providing autonomy over the “collection, access, analysis, interpretation, management, dissemination and re-use” of such data. Indigenous Data Governance encompasses formal policies and procedures that support this data self-determination...