Informal Carers' Perceived Needs and Preferences in Implementing WHO iSupport for Dementia Program: A Cross-Sectional Study

Dingxin Xu, Jing Wang, Lily Dongxia Xiao, Jin Wang, Ying Yu, Shahid Ullah

Research output: Contribution to journalArticlepeer-review

Abstract

This study explored the needs and preferences of informal carers in implementing the Chinese iSupport program. 101 Chinese-Australian and 134 Chinese informal carers of people living with dementia were recruited in this cross-sectional design from July to December 2022 via dual-channel strategies (paper-based/online in China; community centers in Australia). A purpose-designed questionnaire was utilized to assess the carers' preferences. Between-country comparisons of sociodemographic variables and iSupport preferences were analyzed using descriptive statistics, the standard Chi-square test, and the Mann–Whitney U test for non-parametric data. Chinese carers were younger and more educated and received more support from family members than Chinese-Australian carers. Chinese carers demonstrated a greater willingness to utilize iSupport, participate in web-based iSupport, and study iSupport with family members. Both groups preferred paper-based and audio formats for iSupport manuals, desired a facilitator for the program, favored peer support groups, and were willing to pay for facilitated iSupport. This study highlights the similarities and differences in sociodemographic characteristics, needs, and preferences between Chinese and Chinese-Australian carers, providing insights for tailoring strategies to address these needs in varying socio-cultural contexts.

Original languageEnglish
Article numbere70131
Number of pages12
JournalNursing and Health Sciences
Volume27
Issue number2
DOIs
Publication statusPublished - Jun 2025

Keywords

  • cross-sectional study
  • dementia
  • informal carers
  • iSupport
  • needs assessment

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