TY - JOUR
T1 - Integrating care for individuals with FASD
T2 - Results from a multi-stakeholder symposium
AU - Graham, Simon
AU - Guy, Rebecca
AU - Ward, James
AU - Kaldor, John
AU - Donovan, Basil
AU - Knox, Janet
AU - McCowen, Debbie
AU - Bullen, Patricia
AU - Booker, Julie
AU - O'Brien, Chris
AU - Garrett, Kristine
AU - Wand, Handan
PY - 2015/10/5
Y1 - 2015/10/5
N2 - Background: Fetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems suc as health, education, justice and social services. FASD is a complex neurodevelopmental disorder that results i permanent disabilities and associated service needs that change across affected individuals' lifespans. There is degree of interdependency among medical and non-medical providers across these systems that do not frequentl meet or plan a coordinated continuum of care. Improving overall care integration will increase provider-specifi and system capacity, satisfaction, quality of life and outcomes Methods: We conducted a consensus generating symposium comprised of 60 experts from different stakeholde groups: Allied & Mental Health, Education, First Nations & Métis Health, Advocates, Primary Care, Government Healt Policy, Regional FASD Coordinators, Social Services, and Youth Justice. Research questions addressed barriers an solutions to integration across systems and group-specific and system-wide research priorities. Solutions an consensus on prioritized lists were generated by combining the Electronic Meeting System approach with modified Nominal Group Technique' Results: FASD capacity (e.g., training, education, awareness) needs to be increased in both medical and non-medica providers. Outcomes and integration will be improved by implementing: multidisciplinary primary care grou practice models, FASD system navigators/advocates, and patient centred medical homes. Electronic medica records that are accessible to multiple medical and non-medical providers are a key tool to enhancin integration and quality. Eligibility criteria for services are a main barrier to integration across systems. There is need for culturally and community-specific approaches for First Nations communities Conclusions: There is a need to better integrate care for individuals and families living with FASD. Primary Care i well positioned to play a central and important role in facilitating and supporting increased integration. Researc is needed to better address best practices (e.g., interventions, supports and programs) and long-Term individua and family outcomes following a diagnosis of FASD.
AB - Background: Fetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems suc as health, education, justice and social services. FASD is a complex neurodevelopmental disorder that results i permanent disabilities and associated service needs that change across affected individuals' lifespans. There is degree of interdependency among medical and non-medical providers across these systems that do not frequentl meet or plan a coordinated continuum of care. Improving overall care integration will increase provider-specifi and system capacity, satisfaction, quality of life and outcomes Methods: We conducted a consensus generating symposium comprised of 60 experts from different stakeholde groups: Allied & Mental Health, Education, First Nations & Métis Health, Advocates, Primary Care, Government Healt Policy, Regional FASD Coordinators, Social Services, and Youth Justice. Research questions addressed barriers an solutions to integration across systems and group-specific and system-wide research priorities. Solutions an consensus on prioritized lists were generated by combining the Electronic Meeting System approach with modified Nominal Group Technique' Results: FASD capacity (e.g., training, education, awareness) needs to be increased in both medical and non-medica providers. Outcomes and integration will be improved by implementing: multidisciplinary primary care grou practice models, FASD system navigators/advocates, and patient centred medical homes. Electronic medica records that are accessible to multiple medical and non-medical providers are a key tool to enhancin integration and quality. Eligibility criteria for services are a main barrier to integration across systems. There is need for culturally and community-specific approaches for First Nations communities Conclusions: There is a need to better integrate care for individuals and families living with FASD. Primary Care i well positioned to play a central and important role in facilitating and supporting increased integration. Researc is needed to better address best practices (e.g., interventions, supports and programs) and long-Term individua and family outcomes following a diagnosis of FASD.
KW - Fetal alcohol spectrum disorder
KW - Health policy
KW - Integrating care
KW - Primary care
KW - Research needs
UR - http://www.scopus.com/inward/record.url?scp=84942914492&partnerID=8YFLogxK
U2 - 10.1186/s12913-015-1113-8
DO - 10.1186/s12913-015-1113-8
M3 - Article
VL - 15
JO - BMC Health Services Research
JF - BMC Health Services Research
SN - 1472-6963
M1 - 457
ER -