Integrating Patient Reported Outcomes with digital solutions to empower children and families to self-manage complex health conditions

Natalie Bradford; Christine Cashion; Alison Bowers; Rick Walker; Anthony Herbert; Raymond Chan; Patsy Yates

doi:10.5334/ijic.s4065

Integrating Patient Reported Outcomes with digital solutions to empower children and families to self-manage complex health conditions

Natalie Bradford, Christine Cashion, Alison Bowers, Rick Walker, Anthony Herbert, Raymond Chan, Patsy Yates

Research output: Contribution to journal › Meeting Abstract › peer-review

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Abstract

Introduction:

Children with cancer experience distressing and severe symptoms, yet routine monitoring in young people is rare. As a result, symptoms are often undertreated. High symptom burden is associated with increased hospitalisation, lower quality-of-life, poor treatment adherence and long term problems including post-traumatic stress disorder. As part of a larger project that aims to empower and engage children using digital health solutions, the objective of this study was to explore the congruence of symptom burden identified by healthcare providers with child self-report.

Original language	English
Article number	65
Number of pages	2
Journal	International Journal of Integrated Care
Volume	20
DOIs	https://doi.org/10.5334/ijic.s4065
Publication status	Published - 26 Feb 2021
Externally published	Yes
Event	2nd Asia Pacific Conference on Integrated Care - Melbourne, Australia Duration: 11 Nov 2019 → 13 Nov 2019

Keywords

complex health conditions
self management
routine monitoring
patient reported outcomes
symptom management

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10.5334/ijic.s4065Licence: CC BY

Published versionFinal published version, 300 KBLicence: CC BY

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title = "Integrating Patient Reported Outcomes with digital solutions to empower children and families to self-manage complex health conditions",

abstract = "Introduction:Children with cancer experience distressing and severe symptoms, yet routine monitoring in young people is rare. As a result, symptoms are often undertreated. High symptom burden is associated with increased hospitalisation, lower quality-of-life, poor treatment adherence and long term problems including post-traumatic stress disorder. As part of a larger project that aims to empower and engage children using digital health solutions, the objective of this study was to explore the congruence of symptom burden identified by healthcare providers with child self-report.",

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T1 - Integrating Patient Reported Outcomes with digital solutions to empower children and families to self-manage complex health conditions

AU - Bradford, Natalie

AU - Cashion, Christine

AU - Bowers, Alison

AU - Walker, Rick

AU - Herbert, Anthony

AU - Chan, Raymond

AU - Yates, Patsy

PY - 2021/2/26

Y1 - 2021/2/26

N2 - Introduction:Children with cancer experience distressing and severe symptoms, yet routine monitoring in young people is rare. As a result, symptoms are often undertreated. High symptom burden is associated with increased hospitalisation, lower quality-of-life, poor treatment adherence and long term problems including post-traumatic stress disorder. As part of a larger project that aims to empower and engage children using digital health solutions, the objective of this study was to explore the congruence of symptom burden identified by healthcare providers with child self-report.

AB - Introduction:Children with cancer experience distressing and severe symptoms, yet routine monitoring in young people is rare. As a result, symptoms are often undertreated. High symptom burden is associated with increased hospitalisation, lower quality-of-life, poor treatment adherence and long term problems including post-traumatic stress disorder. As part of a larger project that aims to empower and engage children using digital health solutions, the objective of this study was to explore the congruence of symptom burden identified by healthcare providers with child self-report.

KW - complex health conditions

KW - self management

KW - routine monitoring

KW - patient reported outcomes

KW - symptom management

U2 - 10.5334/ijic.s4065

DO - 10.5334/ijic.s4065

M3 - Meeting Abstract

SN - 1568-4156

VL - 20

JO - International Journal of Integrated Care

JF - International Journal of Integrated Care

M1 - 65

T2 - 2nd Asia Pacific Conference on Integrated Care

Y2 - 11 November 2019 through 13 November 2019

ER -

Integrating Patient Reported Outcomes with digital solutions to empower children and families to self-manage complex health conditions

Abstract

Keywords

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