Issues concerning self-report data and population-based data sets involving people with intellectual disabilities

Eric Emerson, David Felce, Roger J. Stancliffe

Research output: Contribution to journalArticlepeer-review

49 Citations (Scopus)

Abstract

This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report and proxy-report data and (b) analysis of population-based data sets. Some people with intellectual disabilities have difficulties with selfreporting due to problems of understanding and communication. However, there are serious doubts about the validity of proxy data for subjective issues. One important challenge with secondary analysis of population-based data sets is the difficulty of accurately identifying survey participants with intellectual disabilities. In both areas examined, it is important to recognize these constraints when interpreting research based on such data.

Original languageEnglish
Pages (from-to)333-348
Number of pages16
JournalIntellectual and Developmental Disabilities
Volume51
Issue number5
DOIs
Publication statusPublished - Oct 2013
Externally publishedYes

Keywords

  • Intellectual disabilities
  • Population-based data
  • Proxy
  • Response bias
  • Secondary analysi
  • Self-report

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