Abstract
Introduction: A growing body of research has examined the physical, psychological, social and financial impacts of living kidney donation. However, little is known about the unique experiences or additional burdens faced by living donors from regional or remote locations.
Objective: To explore the experiences of living kidney donors who live outside metropolitan centres and to determine how support services could be orientated to better meet their unique needs.
Design/Setting/Participants: Seventeen living kidney donors participated in semi-structured telephone interviews. Qualitative data were analysed using thematic analysis.
Findings: Eight themes were identified: (1) donor's emotional well-being is influenced by the recipient's outcome, (2) varied levels of access to medical support and other important services in rural areas, (3) travel takes a toll on time, finances and well-being, (4) varied level of financial impact, (5) medical, emotional and social challenges, (6) both lay and health professional support is valued, (7) varied levels of knowledge and experiences accessing information and (8) a worthwhile experience overall.
Conclusion: Despite many challenges, and travel adding to the complexity, rural living kidney donors generally consider it to be a worthwhile experience. The provision of additional emotional, practical and educational support would be welcomed by this group.
| Original language | English |
|---|---|
| Pages (from-to) | 866-877 |
| Number of pages | 12 |
| Journal | Australian Journal of Rural Health |
| Volume | 31 |
| Issue number | 5 |
| DOIs | |
| Publication status | Published - 1 Oct 2023 |
| Externally published | Yes |
Keywords
- living kidney donor
- living organ donation
- psychosocial
- rural
- support
- transplant