Kate Swaffer, What the hell happened to my brain? Living beyond dementia (Book review)

Jessica Young, Kate Swaffer

Research output: Contribution to journalArticle


Australian advocate and activist for persons with dementia, Kate Swaffer, writes with dignity and grace about her experiences of living with a diagnosis of younger onset dementia. Swaffer skilfully integrates original poems, excerpts from her blog (https://kateswaffer.com/daily-blog/), reflections on current policies and practices, discussions of theoretical models of dementia care, and personal accounts of key events in her own experience of dementia. She exposes critical issues in the current management of dementia from the perspective of someone living with the syndrome.

Swaffer wrote this book for a wide audience; for people living with dementia, for their families, for care professionals, for researchers, for policy makers, as well as for laypeople interested in understanding more about what it is like to live with dementia...
Original languageEnglish
Pages (from-to)391-394
Number of pages4
Issue number3
Early online date25 Feb 2018
Publication statusPublished - Apr 2018


  • Literary review
  • Kate Swaffer
  • Dementia


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