TY - JOUR
T1 - ‘Knowledge is power’
T2 - A framework for partnering with consumers in developing and delivering a scientific meeting in nephrology
AU - Duncanson, Emily
AU - Dansie, Kathryn
AU - Gutman, Talia
AU - Tong, Allison
AU - Howell, Martin
AU - Jesudason, Shilpanjali
AU - Reidlinger, Donna
AU - Williamson, Amber
AU - Scholes-Robertson, Nicole
AU - Murphy, Lisa
AU - Hawley, Carmel M.
AU - Craig, Jonathan C.
AU - Johnson, David W.
AU - McDonald, Stephen
PY - 2020/5/1
Y1 - 2020/5/1
N2 - Involving consumers (patients, carers and family members) across all stages of research is gaining momentum in the nephrology community. Scientific meetings present a partnership opportunity with consumers for dissemination of research findings. The Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) research collaboration, in partnership with Kidney Health Australia, convened two consumer sessions at the 54th Australian and New Zealand Society of Nephrology Annual Scientific Meeting held in September 2018. The educational objectives, topics and session formats were informed by members of the Better Evidence and Translation-Chronic Kidney Disease Consumer Advisory Board (which at the time comprised 36 consumers from around Australia with varied experience of kidney disease). Patients, health professionals and researchers facilitated and presented at the sessions. In-person and live-streaming attendance options were available, with over 400 total participants across the two sessions. Sessions were also video recorded for dissemination and later viewing. Evaluations demonstrated consumers found the presentations informative, relevant and accessible. Attendees indicated strong interest in participating in similar sessions at future scientific meetings. We propose a framework for partnering with consumers as organisers, facilitators, speakers and attendees at scientific meetings in nephrology.
AB - Involving consumers (patients, carers and family members) across all stages of research is gaining momentum in the nephrology community. Scientific meetings present a partnership opportunity with consumers for dissemination of research findings. The Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) research collaboration, in partnership with Kidney Health Australia, convened two consumer sessions at the 54th Australian and New Zealand Society of Nephrology Annual Scientific Meeting held in September 2018. The educational objectives, topics and session formats were informed by members of the Better Evidence and Translation-Chronic Kidney Disease Consumer Advisory Board (which at the time comprised 36 consumers from around Australia with varied experience of kidney disease). Patients, health professionals and researchers facilitated and presented at the sessions. In-person and live-streaming attendance options were available, with over 400 total participants across the two sessions. Sessions were also video recorded for dissemination and later viewing. Evaluations demonstrated consumers found the presentations informative, relevant and accessible. Attendees indicated strong interest in participating in similar sessions at future scientific meetings. We propose a framework for partnering with consumers as organisers, facilitators, speakers and attendees at scientific meetings in nephrology.
KW - conferences
KW - congresses
KW - consumer engagement
KW - patient participation
UR - http://www.scopus.com/inward/record.url?scp=85065441926&partnerID=8YFLogxK
UR - http://purl.org/au-research/grants/NHMRC/GNT1092957
U2 - 10.1111/nep.13570
DO - 10.1111/nep.13570
M3 - Article
AN - SCOPUS:85065441926
SN - 1320-5358
VL - 25
SP - 379
EP - 383
JO - Nephrology
JF - Nephrology
IS - 5
ER -