Making it matter for people with advanced dementia and their family carers: A model of high-quality care

Aileen Collier, Tamsin Symonds, Elly Morgan, Annmarie Hosie, Anita De Bellis, Ann Dadich, Alan Bevan, Justin Prendergast, Meera Agar, Phillips Jane

Research output: Contribution to conferencePaperpeer-review

Abstract

A short statement of the objectives



There is a limited understanding of models that helpfully combine dementia care with palliative care in inpatient hospital settings. This represents a significant void because: there is limited clarity on how patient-centric care might be operationalised; and how limited resources might be used ineffectively and/or inefficiently. As such, this study examined what matters to people with dementia who need such care and their family carers.





Method

The methodologies of positive organisational scholarship in healthcare and video reflexive ethnography were combined by: inviting inpatients in a geriatric and evaluation management unit, carers, clinicians and non-clinical staff to participate; capturing digital recordings of participant accounts of, and experiences with hospital-based care (approximately 60 hours over 12 months); documenting ethnographic fieldwork notes; and inviting participants to view and interpret digital recordings.



Results

According to inpatients and carers, a model of high-quality care requires a structure and processes that serve to elasticise care. The model needs to be conducive to care that is flexible, as demonstrated by: a responsiveness to the changing needs and preferences of patients and carers; subjective (rather than objectified) understandings of time; and integrated social and clinical prowess.



Conclusion

This study clarifies what matters to people with dementia who need palliative care and their family carers. It exemplifies how high-quality care is performed, experienced, and perceived. The findings represent some of the key demonstrations of a model of high-quality care for these individuals.
Original languageEnglish
Publication statusPublished - Oct 2018
EventCanadian Association on Gerontology, 47th Annual Scientific and Educational Meeting, 2018: Making It Matter: Mobilizing Aging Research, Practice & Policy - Sheraton Vancouver Wall Centre, Vancouver, Canada
Duration: 18 Oct 201820 Oct 2018
http://cag2018.ca/

Conference

ConferenceCanadian Association on Gerontology, 47th Annual Scientific and Educational Meeting, 2018
Abbreviated titleCAG2018
CountryCanada
CityVancouver
Period18/10/1820/10/18
Internet address

Keywords

  • dementia care
  • palliative care
  • patient-centric care
  • care model

Fingerprint Dive into the research topics of 'Making it matter for people with advanced dementia and their family carers: A model of high-quality care'. Together they form a unique fingerprint.

Cite this