Making the Invisible Visible: Hidden Voices Initiate Collaboration in Research

Maria Alejandra  Pinero de Plaza; Penelope McMillan

Abstract

This collaboration between academic researchers and health consumer advocates lies in an area of research that is sparse. Not only is the field of study new, but also the strategies are innovative. The task of bringing hidden experiences into public view has been undertaken in a multidimensional approach, incorporating the visual as well as words and hard data. The diversity and flexibility of the team have allowed rapid responses to changes in circumstance, such as the temporary availability of telehealth to FHBP, and enabled engagement with media as well as peer-reviewed journals.

Original language	English
Publication status	Published - 19 Mar 2021
Event	Consumers Health Forum Virtual Summit 2021: Shifting Gears - Duration: 17 Mar 2021 → 19 Mar 2021 http://www.chfsummit.com.au/ehome/index.php?eventid=518286& (Conference website) https://dc-platform-web-prod-chf.s3.ap-southeast-2.amazonaws.com/uploads/client_upload/file/26/CHF_Summit_2021.pdf (Conference program) https://na.eventscloud.com/file_uploads/11cab7a8ed89b871c3be8519730676d6_CHFForum2021_programbooklet11.pdf (e-summit program booklet)

Conference

Conference	Consumers Health Forum Virtual Summit 2021
Abbreviated title	CHF Summit 2021
Period	17/03/21 → 19/03/21
Other	Australasia’s inaugural consumer health summit went virtual, putting the high impact event in reach of a wider audience within Australia, New Zealand and worldwide. Consumers as leaders in healthcare were a central theme of this first Australian and New Zealand Consumer Experience and Leadership in Health Summit. CHF Summit 2021: Shifting Gears brought together consumers and other leaders from the health sector, to explore the latest research and developments which drive health towards a consumer-centered culture.
Internet address	http://www.chfsummit.com.au/ehome/index.php?eventid=518286& (Conference website) https://dc-platform-web-prod-chf.s3.ap-southeast-2.amazonaws.com/uploads/client_upload/file/26/CHF_Summit_2021.pdf (Conference program) https://na.eventscloud.com/file_uploads/11cab7a8ed89b871c3be8519730676d6_CHFForum2021_programbooklet11.pdf (e-summit program booklet)

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being
SDG 10 Reduced Inequalities
SDG 17 Partnerships for the Goals

Keywords

Consumer engagement
Communities
Participatory Action Research
Co-design
Co-research
Co-created video
Complex adaptive systems (CASs)
care and management
Homebound people
Health access
Marginalisation

Access to Document

https://chf.delegateconnect.co/talks/making-the-invisible-visible-hidden-voices-initiate-collaboration-in-research-65Licence: In Copyright

6 Film, Digital Media or Visual Output
5 Article
2 Commissioned report
2 Poster
More

Measuring fundamental care using complexity science: A descriptive case study of a methodological innovation
Conroy, T., Pinero de Plaza, M. A., Mudd, A., Mitchell, M. M. & Kitson, A., Jun 2023, In: Journal of Clinical Nursing. 32, 11-12, p. 2903-2912 10 p.
Research output: Contribution to journal › Article › peer-review
23 Citations (Scopus)
A transdisciplinary research program addressing complex health research problems
Pinero de Plaza, M. A., 30 Mar 2022, In: JBI Evidence Implementation eBulletin. Issue 1, 1 p.
Research output: Contribution to journal › Comment/debate

Open Access
Consumer engagement in health care policy, research and services: a systematic review and meta-analysis of methods and effects
Wiles, L., Kay, D., Luker, J., Worley, A., Austin, J., Ball, A., Bevan, A., Cousins, M., Dalton, S., Hodges, E., Horvat, L., Kerrins, E., Marker, J., McKinnon, M., McMillan, P., Pinero de Plaza, M. A., Smith, J., Yeung, D. T. & Hillier, S., 27 Jan 2022, In: PLOS ONE. 17, 1, 26 p., e0261808.
Research output: Contribution to journal › Article › peer-review

Open Access
File
99 Citations (Scopus)

621 Downloads (Pure)

A winner of the Big Ideas video competition to improve the Australian health system. Consumer Health Forum of Australia, 2021.
Pinero de Plaza, A. (Recipient), 23 Feb 2021
Prize: Other distinction

File
The Vice-President & Executive Dean’s Awards 2021
Pinero de Plaza, A. (Recipient), 14 Dec 2021
Prize

File

5 Invited talk
3 Oral presentation
2 Participating in a conference, workshop, ...
2 Other
More
- 1 Membership of network
- 1 Visiting an external academic institution

Health Translation SA (HTSA) Research Seminar Series: Partnering with Frail, Homebound, and Bedridden People (#FHBP): Consumer-Led and Co-Designed Knowledge Translation
Pinero de Plaza, M. A. (Author) & McMillan, P. (Author)
23 Jul 2025
Activity: Talk or presentation types › Oral presentation

File
Research Program: Visibility and Technological Solutions for Frail, Homebound and Bedridden People - FHBP
Pinero de Plaza, M. A. (Participant), McMillan, P. (Participant), Beleigoli, A. (Participant), Lawless, M. (Participant), Mudd, A. (Participant), Archibald, M. (Participant), Tieu, M. (Participant), Feo, R. (Participant), Morton, E. (Participant), Lange, B. (Participant), Thompson, M. (Participant), Taylor, D. (Participant), Gordon, S. (Participant), Gancia, A. (Participant), Hunter, S. (Participant), Phelan, K. (Participant), Clark, R. (Participant), Buchanan, R. (Participant), Visvanathan, R. (Participant) & Kitson, A. (Participant)
Jun 2022 → Jun 2026
Activity: Other activity types › Other
Government of South Australia, Commission on Excellence and Innovation in Health (External organisation)
Pinero de Plaza, A. (Member)
31 Jan 2022 → 2025
Activity: Membership types › Membership of network

Cite this

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title = "Making the Invisible Visible: Hidden Voices Initiate Collaboration in Research",

abstract = "This collaboration between academic researchers and health consumer advocates lies in an area of research that is sparse. Not only is the field of study new, but also the strategies are innovative. The task of bringing hidden experiences into public view has been undertaken in a multidimensional approach, incorporating the visual as well as words and hard data. The diversity and flexibility of the team have allowed rapid responses to changes in circumstance, such as the temporary availability of telehealth to FHBP, and enabled engagement with media as well as peer-reviewed journals. ",

keywords = "Consumer engagement, Communities, Participatory Action Research, Co-design, Co-research, Co-created video, Complex adaptive systems (CASs), care and management, Homebound people, Health access, Marginalisation",

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year = "2021",

month = mar,

day = "19",

language = "English",

note = "Consumers Health Forum Virtual Summit 2021 : Shifting Gears, CHF Summit 2021 ; Conference date: 17-03-2021 Through 19-03-2021",

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T1 - Making the Invisible Visible: Hidden Voices Initiate Collaboration in Research

AU - Pinero de Plaza, Maria Alejandra

AU - McMillan, Penelope

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N2 - This collaboration between academic researchers and health consumer advocates lies in an area of research that is sparse. Not only is the field of study new, but also the strategies are innovative. The task of bringing hidden experiences into public view has been undertaken in a multidimensional approach, incorporating the visual as well as words and hard data. The diversity and flexibility of the team have allowed rapid responses to changes in circumstance, such as the temporary availability of telehealth to FHBP, and enabled engagement with media as well as peer-reviewed journals.

AB - This collaboration between academic researchers and health consumer advocates lies in an area of research that is sparse. Not only is the field of study new, but also the strategies are innovative. The task of bringing hidden experiences into public view has been undertaken in a multidimensional approach, incorporating the visual as well as words and hard data. The diversity and flexibility of the team have allowed rapid responses to changes in circumstance, such as the temporary availability of telehealth to FHBP, and enabled engagement with media as well as peer-reviewed journals.

KW - Consumer engagement

KW - Communities

KW - Participatory Action Research

KW - Co-design

KW - Co-research

KW - Co-created video

KW - Complex adaptive systems (CASs)

KW - care and management

KW - Homebound people

KW - Health access

KW - Marginalisation

M3 - Abstract

T2 - Consumers Health Forum Virtual Summit 2021

Y2 - 17 March 2021 through 19 March 2021

ER -

Making the Invisible Visible: Hidden Voices Initiate Collaboration in Research

Abstract

Conference

UN SDGs

Keywords

Access to Document

Fingerprint

Research output

Prizes

Activities

Cite this