Online resources and apps to aid self-diagnosis and help seeking in the perinatal period: A descriptive survey of women's experiences

Nicola Mackintosh; Shona Agarwal; Kirsty Adcock; Natalie Armstrong; Annette Briley; Molly Patterson; Jane Sandall; Qian (Sarah) Gong

doi:10.1016/j.midw.2020.102803

Online resources and apps to aid self-diagnosis and help seeking in the perinatal period: A descriptive survey of women's experiences

Nicola Mackintosh, Shona Agarwal, Kirsty Adcock, Natalie Armstrong, Annette Briley, Molly Patterson, Jane Sandall, Qian (Sarah) Gong

Research output: Contribution to journal › Article › peer-review

15 Citations (Scopus)

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Abstract

Objective: Assess the role of online resources and apps for women's help seeking and staff's response to concerns in the perinatal period. Design: Online survey. Descriptive analysis of women's use and experiences of digital resources for self-diagnosis and help seeking, drawing on numerical and free-text responses. Setting: Two tertiary referral centres and one district general hospital in two UK geographic locations. Participants: 632 postnatal women, surveyed over a 4 month period. Measurements: Women's access to digital devices; frequency and type of health concerns experienced after 22 weeks’ gestation; variability in use and experiences of websites/apps; perceptions of staff's response to concerns after help-seeking. Findings: 1254 women were approached over a 4-month period; 632 participated (response rate: 50%). Women reported a ‘mix and match’ blended use of digital resources to both learn about, and self-diagnose/self-triage for potential complications in pregnancy as an adjunct to care provided by maternity staff. Over half the participants experienced concerns about themselves or their baby after 22 weeks. The top concern was fetal movements, reported by 62%. Women used 91 different digital resources to help with understanding and decision-making, in addition to seeking support from family, friends and healthcare professionals. Enabling features of staff responses were identified from free-text responses (n = 292) by women who sought professional help regarding their health concerns, and influencing factors at clinical, organisational and digital level. Key conclusions and implications for practice: Online information retrieval and digital self-monitoring is increasingly integral to women's self-care during pregnancy and offers opportunities to support escalation of care and shared decision-making. Further work should assess optimal inclusion of this ‘digital work’ into clinical consultations.

Original language	English
Article number	102803
Number of pages	8
Journal	Midwifery
Volume	90
DOIs	https://doi.org/10.1016/j.midw.2020.102803
Publication status	Published - Nov 2020
Externally published	Yes

Bibliographical note

This is an open access article under the CC BY-NC-ND license. ( http://creativecommons.org/licenses/by-nc-nd/4.0/ )

Keywords

eHealth
Health concerns
Online resources
Perinatal care
Self-diagnosis

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Cite this

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title = "Online resources and apps to aid self-diagnosis and help seeking in the perinatal period: A descriptive survey of women's experiences",

abstract = "Objective: Assess the role of online resources and apps for women's help seeking and staff's response to concerns in the perinatal period. Design: Online survey. Descriptive analysis of women's use and experiences of digital resources for self-diagnosis and help seeking, drawing on numerical and free-text responses. Setting: Two tertiary referral centres and one district general hospital in two UK geographic locations. Participants: 632 postnatal women, surveyed over a 4 month period. Measurements: Women's access to digital devices; frequency and type of health concerns experienced after 22 weeks{\textquoteright} gestation; variability in use and experiences of websites/apps; perceptions of staff's response to concerns after help-seeking. Findings: 1254 women were approached over a 4-month period; 632 participated (response rate: 50%). Women reported a {\textquoteleft}mix and match{\textquoteright} blended use of digital resources to both learn about, and self-diagnose/self-triage for potential complications in pregnancy as an adjunct to care provided by maternity staff. Over half the participants experienced concerns about themselves or their baby after 22 weeks. The top concern was fetal movements, reported by 62%. Women used 91 different digital resources to help with understanding and decision-making, in addition to seeking support from family, friends and healthcare professionals. Enabling features of staff responses were identified from free-text responses (n = 292) by women who sought professional help regarding their health concerns, and influencing factors at clinical, organisational and digital level. Key conclusions and implications for practice: Online information retrieval and digital self-monitoring is increasingly integral to women's self-care during pregnancy and offers opportunities to support escalation of care and shared decision-making. Further work should assess optimal inclusion of this {\textquoteleft}digital work{\textquoteright} into clinical consultations.",

keywords = "eHealth, Health concerns, Online resources, Perinatal care, Self-diagnosis",

author = "Nicola Mackintosh and Shona Agarwal and Kirsty Adcock and Natalie Armstrong and Annette Briley and Molly Patterson and Jane Sandall and {(Sarah) Gong}, Qian",

note = "This is an open access article under the CC BY-NC-ND license. ( http://creativecommons.org/licenses/by-nc-nd/4.0/ ) ",

year = "2020",

month = nov,

doi = "10.1016/j.midw.2020.102803",

language = "English",

volume = "90",

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T2 - A descriptive survey of women's experiences

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AU - Agarwal, Shona

AU - Adcock, Kirsty

AU - Armstrong, Natalie

AU - Briley, Annette

AU - Patterson, Molly

AU - Sandall, Jane

AU - (Sarah) Gong, Qian

N1 - This is an open access article under the CC BY-NC-ND license. ( http://creativecommons.org/licenses/by-nc-nd/4.0/ )

PY - 2020/11

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AB - Objective: Assess the role of online resources and apps for women's help seeking and staff's response to concerns in the perinatal period. Design: Online survey. Descriptive analysis of women's use and experiences of digital resources for self-diagnosis and help seeking, drawing on numerical and free-text responses. Setting: Two tertiary referral centres and one district general hospital in two UK geographic locations. Participants: 632 postnatal women, surveyed over a 4 month period. Measurements: Women's access to digital devices; frequency and type of health concerns experienced after 22 weeks’ gestation; variability in use and experiences of websites/apps; perceptions of staff's response to concerns after help-seeking. Findings: 1254 women were approached over a 4-month period; 632 participated (response rate: 50%). Women reported a ‘mix and match’ blended use of digital resources to both learn about, and self-diagnose/self-triage for potential complications in pregnancy as an adjunct to care provided by maternity staff. Over half the participants experienced concerns about themselves or their baby after 22 weeks. The top concern was fetal movements, reported by 62%. Women used 91 different digital resources to help with understanding and decision-making, in addition to seeking support from family, friends and healthcare professionals. Enabling features of staff responses were identified from free-text responses (n = 292) by women who sought professional help regarding their health concerns, and influencing factors at clinical, organisational and digital level. Key conclusions and implications for practice: Online information retrieval and digital self-monitoring is increasingly integral to women's self-care during pregnancy and offers opportunities to support escalation of care and shared decision-making. Further work should assess optimal inclusion of this ‘digital work’ into clinical consultations.

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ER -

Online resources and apps to aid self-diagnosis and help seeking in the perinatal period: A descriptive survey of women's experiences

Abstract

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Keywords

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