Abstract
have experienced improvements in life expectancy, due to
both advances in medical technology and improved social
conditions. At the same time, the shift from institutional
care to care in the community means that ageing parents
often play an extended caregiving role, acting as primary
caregiver for their adult child well into late life. Very few
studies have focused on the caregiving experience; instead
focusing mainly on the experiences of parents who reside in
their country of origin.
Aim: This research compares and contrasts how older
parents living in Australia who are from Anglo Australian and
Greek/Italian backgrounds experience caring for an adult
child with ID.
Methods: In-depth semi-structured interviews were carried
out with n=15 Anglo Australian mothers and fathers (average
age 70), n=4 Greek mothers (average age 78) and n=6
Italian mothers and n=1 couple (average age 72). On
average their adult children were aged 41 years (range 22 to
53 years).
Findings: The main themes to emerge, regardless of cultural
background, were: (a) the perpetual parenting role (b)
uncertain futures and (c) complexity of sibling involvement.
The parents from Greek and Italian backgrounds additionally
face particular issues around potential social isolation as a
result of their caregiving role and adult child’s disability. The
strong cultural expectation that wider family members, such
as siblings, will provide on-going care in the future can also
create potential vulnerability for the adult son or daughter
with ID if this expectation remains unmet.
Conclusion: There is an urgent need for information and
support for growing numbers of ageing parents caring
for offspring with ID, particularly those from culturally and
linguistically diverse backgrounds.
both advances in medical technology and improved social
conditions. At the same time, the shift from institutional
care to care in the community means that ageing parents
often play an extended caregiving role, acting as primary
caregiver for their adult child well into late life. Very few
studies have focused on the caregiving experience; instead
focusing mainly on the experiences of parents who reside in
their country of origin.
Aim: This research compares and contrasts how older
parents living in Australia who are from Anglo Australian and
Greek/Italian backgrounds experience caring for an adult
child with ID.
Methods: In-depth semi-structured interviews were carried
out with n=15 Anglo Australian mothers and fathers (average
age 70), n=4 Greek mothers (average age 78) and n=6
Italian mothers and n=1 couple (average age 72). On
average their adult children were aged 41 years (range 22 to
53 years).
Findings: The main themes to emerge, regardless of cultural
background, were: (a) the perpetual parenting role (b)
uncertain futures and (c) complexity of sibling involvement.
The parents from Greek and Italian backgrounds additionally
face particular issues around potential social isolation as a
result of their caregiving role and adult child’s disability. The
strong cultural expectation that wider family members, such
as siblings, will provide on-going care in the future can also
create potential vulnerability for the adult son or daughter
with ID if this expectation remains unmet.
Conclusion: There is an urgent need for information and
support for growing numbers of ageing parents caring
for offspring with ID, particularly those from culturally and
linguistically diverse backgrounds.
Original language | English |
---|---|
Pages | 38 |
Number of pages | 1 |
Publication status | Published - 7 Sept 2018 |
Event | New Zealand Association of Gerontology Conference - Duration: 6 Sept 2018 → … |
Conference
Conference | New Zealand Association of Gerontology Conference |
---|---|
Period | 6/09/18 → … |
Keywords
- intellectual disability
- parenting
- Australia
- older parents