Partnership in practice: what parents of a disabled child want from a generic health professional in Australia

Jennifer Fereday, Candice Oster, Philip Darbyshire

    Research output: Contribution to journalArticle

    22 Citations (Scopus)

    Abstract

    Despite the love that exists between children with disabilities and their parents and the positive contribution that children with a disability make to families and communities, caring for a child with a disability can be difficult and demanding for parents, carers and the family. Their interaction with the many and varied health professionals they encounter can serve to either ameliorate or exacerbate these difficulties. In this paper we report on a qualitative needs analysis undertaken as part of a project to develop disability awareness resources for generic health professionals (GHP). Data were collected through focus groups (n = 5) and individual interviews (n = 7) with 34 parents/carers and was analysed using a process of thematic analysis. 'Partnership' was identified as the overarching theme that answers the question 'What do parents/carers want from a GHP?' Three further themes were identified that together tell the partnership 'story'. These are: 'The GHP-parent partnership', 'Qualities of a GHP', and 'The role of advocacy in the GHP-parent partnership'. Implications are presented that highlight the importance of advocacy in GHP-parent partnerships and suggest improvements in GHP education and preparation.

    Original languageEnglish
    Pages (from-to)624-632
    Number of pages9
    JournalHealth and Social Care in The Community
    Volume18
    Issue number6
    DOIs
    Publication statusPublished - Nov 2010

    Keywords

    • Advocacy
    • Disability
    • Generic health professional
    • Partnership

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