Patient-reported outcomes (PROs) as personalised cancer care: report from a 2023 Australian consensus meeting (PROActive)

Carolyn G. Mazariego; Sandra Avery; Geoffrey P. Delaney; Joanna E. Fardell; Susan Hayes; Darren Haywood; Julia Lai-Kwon; Sandra Nolte; Joanne Pearson; Natasha A. Roberts; Christina Signorelli; Natalie Taylor; Kate Webber; Bogda Koczwara

doi:10.1016/j.eclinm.2025.103295

Patient-reported outcomes (PROs) as personalised cancer care: report from a 2023 Australian consensus meeting (PROActive)

Carolyn G. Mazariego, Sandra Avery, Geoffrey P. Delaney, Joanna E. Fardell, Susan Hayes, Darren Haywood, Julia Lai-Kwon, Sandra Nolte, Joanne Pearson, Natasha A. Roberts, Christina Signorelli, Natalie Taylor, Kate Webber, Bogda Koczwara

College of Medicine and Public Health

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Abstract

This viewpoint reports on the outcomes of the 2023 Australian interest holder meeting on the use of patient-reported outcomes (PROs) in cancer care and discusses its findings in the context of the significant national investment into the collection of PRO data in Australia. The interest holders emphasised the importance for PRO data collection to be relevant to the care of individual patients and personalised to their needs and preferences to ensure direct impact on patients' care and outcomes. They also prioritised the coordination and integration of various PRO collection efforts to improve patient outcomes and care quality.

Original language	English
Article number	103295
Number of pages	5
Journal	EClinicalMedicine
Volume	85
DOIs	https://doi.org/10.1016/j.eclinm.2025.103295
Publication status	Published - Jul 2025

Keywords

Cancer care
Digital health
Patient centred care
Patient-reported outcomes

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1016/j.eclinm.2025.103295Licence: CC BY-NC-ND

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Mazariego, C. G., Avery, S., Delaney, G. P., Fardell, J. E., Hayes, S., Haywood, D., Lai-Kwon, J., Nolte, S., Pearson, J., Roberts, N. A., Signorelli, C., Taylor, N., Webber, K., & Koczwara, B. (2025). Patient-reported outcomes (PROs) as personalised cancer care: report from a 2023 Australian consensus meeting (PROActive). EClinicalMedicine, 85, Article 103295. https://doi.org/10.1016/j.eclinm.2025.103295

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abstract = "This viewpoint reports on the outcomes of the 2023 Australian interest holder meeting on the use of patient-reported outcomes (PROs) in cancer care and discusses its findings in the context of the significant national investment into the collection of PRO data in Australia. The interest holders emphasised the importance for PRO data collection to be relevant to the care of individual patients and personalised to their needs and preferences to ensure direct impact on patients' care and outcomes. They also prioritised the coordination and integration of various PRO collection efforts to improve patient outcomes and care quality.",

keywords = "Cancer care, Digital health, Patient centred care, Patient-reported outcomes",

author = "Mazariego, {Carolyn G.} and Sandra Avery and Delaney, {Geoffrey P.} and Fardell, {Joanna E.} and Susan Hayes and Darren Haywood and Julia Lai-Kwon and Sandra Nolte and Joanne Pearson and Roberts, {Natasha A.} and Christina Signorelli and Natalie Taylor and Kate Webber and Bogda Koczwara",

year = "2025",

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doi = "10.1016/j.eclinm.2025.103295",

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Mazariego, CG, Avery, S, Delaney, GP, Fardell, JE, Hayes, S, Haywood, D, Lai-Kwon, J, Nolte, S, Pearson, J, Roberts, NA, Signorelli, C, Taylor, N, Webber, K & Koczwara, B 2025, 'Patient-reported outcomes (PROs) as personalised cancer care: report from a 2023 Australian consensus meeting (PROActive)', EClinicalMedicine, vol. 85, 103295. https://doi.org/10.1016/j.eclinm.2025.103295

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T1 - Patient-reported outcomes (PROs) as personalised cancer care

T2 - report from a 2023 Australian consensus meeting (PROActive)

AU - Mazariego, Carolyn G.

AU - Avery, Sandra

AU - Delaney, Geoffrey P.

AU - Fardell, Joanna E.

AU - Hayes, Susan

AU - Haywood, Darren

AU - Lai-Kwon, Julia

AU - Nolte, Sandra

AU - Pearson, Joanne

AU - Roberts, Natasha A.

AU - Signorelli, Christina

AU - Taylor, Natalie

AU - Webber, Kate

AU - Koczwara, Bogda

PY - 2025/7

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N2 - This viewpoint reports on the outcomes of the 2023 Australian interest holder meeting on the use of patient-reported outcomes (PROs) in cancer care and discusses its findings in the context of the significant national investment into the collection of PRO data in Australia. The interest holders emphasised the importance for PRO data collection to be relevant to the care of individual patients and personalised to their needs and preferences to ensure direct impact on patients' care and outcomes. They also prioritised the coordination and integration of various PRO collection efforts to improve patient outcomes and care quality.

AB - This viewpoint reports on the outcomes of the 2023 Australian interest holder meeting on the use of patient-reported outcomes (PROs) in cancer care and discusses its findings in the context of the significant national investment into the collection of PRO data in Australia. The interest holders emphasised the importance for PRO data collection to be relevant to the care of individual patients and personalised to their needs and preferences to ensure direct impact on patients' care and outcomes. They also prioritised the coordination and integration of various PRO collection efforts to improve patient outcomes and care quality.

KW - Cancer care

KW - Digital health

KW - Patient centred care

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SN - 2589-5370

VL - 85

JO - EClinicalMedicine

JF - EClinicalMedicine

M1 - 103295

ER -

Patient-reported outcomes (PROs) as personalised cancer care: report from a 2023 Australian consensus meeting (PROActive)

Abstract

Keywords

UN SDGs

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