Activities per year
Objective: This study aims to use a two-phase, web-based ethnographic (netnography) and co-design approach to explore specific health care and self-care topics that older adults discuss in a UK-based online community and how peer supporters respond to these queries with informational and/or social support and engage with stakeholders to define the needs and requirements for new ICT-based interventions capable of reducing social isolation and facilitating LTC self-management support.
Methods: The first phase of the research will involve a qualitative netnographic analysis of posts in discussion forums in a publicly accessible online community. The second phase will involve co-design workshops with health care consumers (ie, older adults and carers) and service providers to determine the needs and requirements for new ICT-based interventions and digital innovations. Constructivist grounded theory will be used in the first phase; in the second phase, the co-design workshops will be audiorecorded and analyzed thematically.
Results: This research project is in progress. Permission was obtained from the website administrator to use materials from the social media forum; data collection for the first phase began in April 2020. The second phase of the study is expected to begin in late 2020. This study is due to be completed by the end of 2021.
Conclusions: This study is the first, to the best of our knowledge, to combine qualitative netnography with an iterative co-design framework to specify the needs and requirements for new ICT-based interventions. The findings from this study will inform the next phase of the multiphase knowledge translation project and will provide insights into the potential of online peer health communities to reduce social isolation and facilitate chronic illness self-management support and self-care.
|Number of pages||13|
|Journal||Journal of Medical Internet Research: Research Protocols|
|Publication status||Published - Sep 2020|
Bibliographical noteThis is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included.
- chronic illness and disease
- long-term conditions
- peer support
- social media
- online community
Research Program led by Dr Pinero de Plaza (2019-2026): Visibility and Technological Solutions for Frail, Homebound and Bedridden People - FHBP
Maria Alejandra Pinero de Plaza (Participant), Penelope McMillan (Participant), Alline Beleigoli (Participant), Michael Lawless (Participant), Alexandra Mudd (Participant), Mandy Archibald (Participant), Matthew Tieu (Participant), Rebecca Feo (Participant), Erin Morton (Participant), Belinda Lange (Participant), Mark Thompson (Participant), Danielle Taylor (Participant), Sue Gordon (Participant), Agustina Gancia (Participant), Sarah Hunter (Participant), Kathy Phelan (Participant), Robyn Clark (Participant), Ricky Buchanan (Participant), Renuka Visvanathan (Participant) & Alison Kitson (Participant)2021
Activity: Other activity types › Other
Presentation about “Not well enough to attend appointments: Telehealth versus health marginalization”
Alejandra Pinero de Plaza (Speaker)5 Nov 2020 → 25 Nov 2020
Activity: Talk or presentation types › Oral presentation
Pinero de Plaza, M. A., 2 Mar 2021, Vimeo.
Research output: Other contributionOpen Access
Making the Invisible Visible: Exploring the Experiences of Frail Homebound and Bedridden People: Preliminary Research Report for the CommunityPinero de Plaza, M. A., 16 Apr 2021, Bedford Park, South Australia: Flinders Universtiy. 34 p.
Research output: Book/Report › Commissioned reportOpen AccessFile2 Downloads (Pure)
Pinero de Plaza, M. A., Beleigoli, A., Mudd, A., Tieu, D. M., McMillan, P., Lawless, M., Feo, R., Archibald, M. & Kitson, A., 19 Apr 2021, Healthier Lives, Digitally Enabled - Selected Papers from the Digital Health Institute Summit 2020: Healthier Lives, Digitally Enabled. Merolli, M., Bain, C. & Schaper, L. K. (eds.). Amsterdam, Netherlands: IOS PRESS, p. 72-79 8 p. 13. (Studies in Health Technology and Informatics; vol. 276).
Research output: Chapter in Book/Report/Conference proceeding › Chapter › peer-reviewOpen AccessFile