Activities per year
Objective: This study aims to use a two-phase, web-based ethnographic (netnography) and co-design approach to explore specific health care and self-care topics that older adults discuss in a UK-based online community and how peer supporters respond to these queries with informational and/or social support and engage with stakeholders to define the needs and requirements for new ICT-based interventions capable of reducing social isolation and facilitating LTC self-management support.
Methods: The first phase of the research will involve a qualitative netnographic analysis of posts in discussion forums in a publicly accessible online community. The second phase will involve co-design workshops with health care consumers (ie, older adults and carers) and service providers to determine the needs and requirements for new ICT-based interventions and digital innovations. Constructivist grounded theory will be used in the first phase; in the second phase, the co-design workshops will be audiorecorded and analyzed thematically.
Results: This research project is in progress. Permission was obtained from the website administrator to use materials from the social media forum; data collection for the first phase began in April 2020. The second phase of the study is expected to begin in late 2020. This study is due to be completed by the end of 2021.
Conclusions: This study is the first, to the best of our knowledge, to combine qualitative netnography with an iterative co-design framework to specify the needs and requirements for new ICT-based interventions. The findings from this study will inform the next phase of the multiphase knowledge translation project and will provide insights into the potential of online peer health communities to reduce social isolation and facilitate chronic illness self-management support and self-care.
|Number of pages||13|
|Journal||Journal of Medical Internet Research: Research Protocols|
|Publication status||Published - Sep 2020|
Bibliographical noteThis is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on http://www.researchprotocols.org, as well as this copyright and license information must be included.
- chronic illness and disease
- long-term conditions
- peer support
- social media
- online community
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A winner of the Big Ideas video competition to improve the Australian health system. Consumer Health Forum of Australia, 2021.
Pinero de Plaza, Maria Alejandra (Recipient), 23 Feb 2021
Prize: Other distinctionFile
The Vice-President & Executive Dean’s Awards 2021
Pinero de Plaza, Maria Alejandra (Recipient), 14 Dec 2021
Commission on Excellence and Innovation in Health (CEIH) (External organisation)
Alejandra Pinero de Plaza (Member)31 Jan 2022 → 2025
Activity: Membership types › Membership of network
Research Program: Visibility and Technological Solutions for Frail, Homebound and Bedridden People - FHBP
Maria Alejandra Pinero de Plaza (Participant), Penelope McMillan (Participant), Alline Beleigoli (Participant), Michael Lawless (Participant), Alexandra Mudd (Participant), Mandy Archibald (Participant), Matthew Tieu (Participant), Rebecca Feo (Participant), Erin Morton (Participant), Belinda Lange (Participant), Mark Thompson (Participant), Danielle Taylor (Participant), Sue Gordon (Participant), Agustina Gancia (Participant), Sarah Hunter (Participant), Kathy Phelan (Participant), Robyn Clark (Participant), Ricky Buchanan (Participant), Renuka Visvanathan (Participant) & Alison Kitson (Participant)Jun 2022 → Jun 2026
Activity: Other activity types › Other
Consumers Health Forum Virtual Summit 2021
Alejandra Pinero de Plaza (Participant)18 Apr 2021
Activity: Participating in or organising an event types › Participating in a conference, workshop, ...
PROLIFERATE: A Tool to Measure Impact and Usability of AI-Powered TechnologiesPinero de Plaza, M. A., Lambrakis, K., Morton, E., Beleigoli, A., Lawless, M., McMillan, P., Archibald, M., Ambagtsheer, R., Khan, E., Mudd, A., Clark, R., Barrera-Causil, C., Marmolejo-Ramos, F., Visvanathan, R. & Kitson, A., 21 Feb 2022, p. 1.
Research output: Contribution to conference › Abstract › peer-review
Highlighting the invisible: Frail, Homebound and Bedridden PeoplePinero de Plaza, M. A., 2 Mar 2021, Vimeo.
Research output: Other contributionOpen Access
Making the Invisible Visible: Exploring the Experiences of Frail Homebound and Bedridden People: Preliminary Research Report for the CommunityPinero de Plaza, M. A., 16 Apr 2021, Bedford Park, South Australia: Flinders University. 34 p.
Research output: Book/Report › Commissioned reportOpen AccessFile17 Downloads (Pure)