TY - JOUR
T1 - Perspectives of paediatric and adult gastroenterologists on transfer and transition care of adolescents with inflammatory bowel disease
AU - Wright, Erica
AU - Williams, Joanne
AU - Andrews, Jane
AU - Day, Andrew
AU - Gearry, Richard
AU - Bampton, Peter
AU - Moore, David
AU - Lemberg, Daniel
AU - Ravikumaran, Rakesh
AU - Wilson, John
AU - Lewindon, Peter
AU - Radford-Smith, Graham
AU - Rosenbaum, Jeremy
AU - Catto-Smith, Anthony
AU - Desmond, Paul
AU - Connell, William
AU - Cameron, Donald
AU - Alex, George
AU - Bell, Sally
AU - De Cruz, Peter
PY - 2014/5
Y1 - 2014/5
N2 - Background: Programmes specific to inflammatory bowel disease (IBD) that facilitate transition from paediatric to adult care are currently lacking. Aim: We aimed to explore the perceived needs of adolescents with IBD among paediatric and adult gastroenterologists and to identify barriers to effective transition. Methods: A web-based survey of paediatric and adult gastroenterologists in Australia and New Zealand employed both ranked items (Likert scale; from 1 not important to 5 very important) and forced choice items regarding the importance of various factors in faciitating effective transition of adolescents from paediatric to adult care. Results: Response rate among 178 clinicians was 41%. Only 23% of respondents felt that adolescents with IBD were adequately prepared for transition to adult care. Psychological maturity (Mean = 4.3, standard deviation (SD) = 0.70) and readiness as assessed by adult caregiver (Mean = 4, SD = 0.72) were prioritised as the most important factors in determining timing of transfer. Self-efficacy and readiness as assessed by adult caregiver were considered the two most important factors to determine timing of transition by both groups of gastroenterologists. Poor medical and surgical handover (Mean = 4.10, SD = 0.8) and patients' lack of responsibility for their own care (Mean= 4.10, SD = 0.82) were perceived as major barriers to successful transition by both paediatric and adult gastroenterologists. Conclusions: Deficiencies exist in current transition care of adolescents with IBD in Australia and New Zealand. Standardising transition care practices with strategies aimed at optimising communication, patient education, self-efficacy and adherence may improve outcomes.
AB - Background: Programmes specific to inflammatory bowel disease (IBD) that facilitate transition from paediatric to adult care are currently lacking. Aim: We aimed to explore the perceived needs of adolescents with IBD among paediatric and adult gastroenterologists and to identify barriers to effective transition. Methods: A web-based survey of paediatric and adult gastroenterologists in Australia and New Zealand employed both ranked items (Likert scale; from 1 not important to 5 very important) and forced choice items regarding the importance of various factors in faciitating effective transition of adolescents from paediatric to adult care. Results: Response rate among 178 clinicians was 41%. Only 23% of respondents felt that adolescents with IBD were adequately prepared for transition to adult care. Psychological maturity (Mean = 4.3, standard deviation (SD) = 0.70) and readiness as assessed by adult caregiver (Mean = 4, SD = 0.72) were prioritised as the most important factors in determining timing of transfer. Self-efficacy and readiness as assessed by adult caregiver were considered the two most important factors to determine timing of transition by both groups of gastroenterologists. Poor medical and surgical handover (Mean = 4.10, SD = 0.8) and patients' lack of responsibility for their own care (Mean= 4.10, SD = 0.82) were perceived as major barriers to successful transition by both paediatric and adult gastroenterologists. Conclusions: Deficiencies exist in current transition care of adolescents with IBD in Australia and New Zealand. Standardising transition care practices with strategies aimed at optimising communication, patient education, self-efficacy and adherence may improve outcomes.
KW - Adolescent
KW - Inflammatory bowel disease
KW - Transfer
KW - Transition
UR - http://www.scopus.com/inward/record.url?scp=84900026688&partnerID=8YFLogxK
U2 - 10.1111/imj.12402
DO - 10.1111/imj.12402
M3 - Article
VL - 44
SP - 490
EP - 496
JO - Internal Medicine Journal
JF - Internal Medicine Journal
SN - 0004-8291
IS - 5
ER -